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Published on: April 12, 2021
Development of a chronic kidney disease patient navigator program
Stacey E Jolly1, Sankar D Navaneethan2, Jesse D Schold3,4
1Department of General Internal Medicine, Medicine Institute, Cleveland Clinic, 9500 Euclid Avenue- G10, Cleveland, OH, USA. jollys@ccf.org.
A new Chronic Kidney Disease (CKD) patient navigator program was created to coordinate care and educate patients. This initiative aims to improve outcomes by addressing system barriers and enhancing patient engagement in clinical trials.
Area of Science:
- Nephrology
- Translational Research
- Healthcare Management
Background:
- Chronic Kidney Disease (CKD) presents a significant public health challenge.
- There is a lack of translational research in type 2 CKD that includes educational interventions.
- Patient navigators have demonstrated success in reducing disparities and improving outcomes in oncology.
Purpose of the Study:
- To describe the development of a CKD Patient Navigator program.
- The program aims to coordinate patient care, overcome systemic barriers, and enhance patient education and motivation.
Main Methods:
- The program is based on the Chronic Care Model for chronic disease management.
- A multidisciplinary research team, augmented with IT and data management specialists, developed the program.
- Key phases included hiring lay navigators, comprehensive training (general navigation, CKD education, EHR), and implementation with defined care barriers and EHR templates.
Main Results:
- Two CKD patient navigators have been hired to support patients in a clinical trial.
- Navigators received training in patient navigation, CKD-specific education, and electronic health record (EHR) systems, including privacy and research protocols.
Conclusions:
- Novel approaches, such as the CKD patient navigator program, are crucial for improving CKD care.
- The program emphasizes team-based care and health information technology to adapt to evolving healthcare systems.
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