Sleep concerns in children and young people with cerebral palsy in their home setting

Susan M McCabe1,2, A Marie Blackmore2, Chris R Abbiss1

  • 1School of Exercise and Health Sciences, Edith Cowan University, Joondalup, Western Australia, Australia.

Insights

Sleep concerns in children with cerebral palsy (CP) differ by age and motor function. Key issues include body position, settling routines, pain, and pressure care, varying significantly across developmental stages and functional levels.

Area of Science:

  • Pediatric Sleep Medicine
  • Neurology
  • Rehabilitation Science

Background:

  • Sleep disturbances are prevalent in children with cerebral palsy (CP).
  • Understanding specific in-home sleep concerns is crucial for targeted interventions.
  • Variations in sleep issues may exist based on age and motor function levels.

Purpose of the Study:

  • To identify and characterize in-home sleep concerns in children and young people with CP.
  • To analyze these concerns across different age groups and Gross Motor Function Classification Scale (GMFCS) levels.

Main Methods:

  • Retrospective review of clinical notes from 154 children and young people with CP (aged 1-18 years) who received home-based sleep services.
  • Categorization of reported sleep concerns based on age groups (1-5, 6-13, 14-18) and GMFCS levels (I-V).

Main Results:

  • Sixteen distinct sleep-related concerns were identified, with most individuals experiencing multiple issues.
  • Body position was a concern across all ages, particularly in higher GMFCS levels (IV-V).
  • Settling routines were a major concern for younger children and those with lower GMFCS levels (I-II), while pain and pressure care concerns increased with age and higher GMFCS levels.

Conclusions:

  • Sleep concerns in children with CP are heterogeneous and significantly influenced by age and GMFCS level.
  • Identified concerns encompass impairments in body structure/function, activity limitations, environmental factors, and personal support needs.
  • Multi-disciplinary, home-based assessments and interventions are recommended for effective management of sleep issues in this population.
Abstract

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