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Your Patient Has Congenital Heart Disease--What Questions Should You Ask to Provide High-Quality Care?

Marion E McRae1

  • 1Marion E. McRae, MScN, RN-BC, CCRN-CSC-CMC, ACNP-BC, CCN(C), is a nurse practitioner for the Guerin Family Congenital Heart Program, Cedars-Sinai Medical Center, Los Angeles, California; and clinical instructor at David Geffen School of Medicine, University of California at Los Angeles, California.

Dimensions of Critical Care Nursing : DCCN
|June 8, 2015
PubMed

Insights

Congenital heart disease (CHD) affects many adults, making it crucial to understand this common birth defect. Informed patients with CHD can achieve better care outcomes and satisfaction by asking the right questions and using available resources.

Area of Science:

  • Cardiology
  • Pediatrics
  • Public Health

Background:

  • Congenital heart disease (CHD) represents the most frequent congenital anomaly.
  • A significant majority of individuals diagnosed with CHD transition into adulthood.
  • Effective management necessitates informed patient engagement.

Purpose of the Study:

  • To underscore the importance of patient knowledge in managing congenital heart disease.
  • To highlight the benefits of informed questioning and resource utilization for adult CHD patients.
  • To improve patient outcomes and healthcare satisfaction in the CHD population.

Main Methods:

  • Literature review on patient education in chronic conditions.
  • Analysis of patient-reported outcome measures in CHD.
  • Development of informational guidelines for CHD patients and caregivers.

Main Results:

  • Patient knowledge correlates positively with treatment adherence and outcomes.
  • Access to tailored resources empowers patients to navigate complex care.
  • Effective communication between patients and healthcare providers is paramount.

Conclusions:

  • Empowering adult patients with CHD through knowledge and resources is essential for optimal health.
  • Proactive patient engagement significantly enhances satisfaction with care.
  • Further research should focus on developing accessible educational tools for the CHD community.

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