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Participation in Leisure Activities by Children and Adolescents with Juvenile Idiopathic Arthritis
Sabrina Cavallo1, Annette Majnemer2, Ciarán M Duffy2
1From the Département de Médecine Sociale et Préventive, École de Santé Publique, and Institut de Recherche en Santé Publique, and École de Réadaptation, Faculté de Médecine, Université de Montréal; Montreal Children's Hospital, McGill University Health Center; Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal; School of Physical and Occupational Therapy, McGill University; Public Health Department, Montréal, Québec; and Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.S. Cavallo, MSc, BSc(OT), École de Santé Publique, and Institut de Recherche en Santé Publique, Université de Montréal, and Montreal Children's Hospital, McGill University Health Center, and Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal; A. Majnemer, PhD, OT, Montreal Children's Hospital, McGill University Health Center, and School of Physical and Occupational Therapy, McGill University; C.M. Duffy, MD, Children's Hospital of Eastern Ontario; D. Ehrmann Feldman, PhD, PT, École de Santé Publique, and Institut de Recherche en Santé Publique, and École de Réadaptation, Faculté de Médecine, Université de Montréal, and Centre de Recherche Interdisciplinaire en Réadaptation du Montréal Métropolitain, Institut de Réadaptation de Montréal, and Montreal Children's Hospital, and Public Health Department. sabrina.cavallo@umontreal.ca.
Objective:
To describe leisure activities of children and adolescents with juvenile idiopathic arthritis (JIA) in terms of diversity, intensity, and enjoyment, and to identify potential determinants.
Methods:
One hundred seven children and adolescents aged 8-17 years diagnosed with JIA and their families participated in this cross-sectional study. Participants answered the Children's Assessment of Participation and Enjoyment, which measures involvement in leisure (recreation, active physical, social, skill-based, self-improvement). Disease characteristics and sociodemographic factors were abstracted from the child's medical file.
Results:
In terms of intensity, individuals with JIA were more often engaged in informal rather than formal leisure activities [t(106) = 45.5, p < 0.0001]. When intensity scores were compared across activity type, results showed that participants with JIA were most often involved in social and recreational activities (p < 0.001). The level of enjoyment was highest for social activities and lowest for self-improvement activities (p < 0.001). Those with active arthritis displayed less diverse (p = 0.016) and less intense (p = 0.011) participation in active physical activities, and less frequent involvement in informal activities (p = 0.043) compared with those who were asymptomatic.
Conclusion:
Children and adolescents with JIA tend to participate more in sedentary types of activities. Greater disease activity may dissuade children and adolescents from participating in more active pursuits, which places them at greater risk for adopting sedentary lifestyles. The identification of determinants of leisure activities in children and adolescents with arthritis may allow healthcare professionals to assess children's health needs with more precision and promote a healthier lifestyle.
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