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Genetic Counseling-Stress, Coping, and the Empowerment Perspective
A McConkie-Rosell1, J A Sullivan
1Department of Pediatrics, Division of Medical Genetics, Duke University Medical Center, Durham, North Carolina, 27710, mccon006@mc.duke.edu.
Genetic counseling interventions can be enhanced by an empowerment framework. This approach supports patient autonomy and improves coping by fostering control and mastery in decision-making.
Area of Science:
- Medical Genetics
- Psychology
- Health Education
Background:
- Nondirectiveness is a foundational principle in genetic counseling, but its definition and application are debated.
- Existing genetic counseling methods require refinement to better quantify and enhance the process.
- There's a need to understand the interplay between education and counseling in genetic services.
Purpose of the Study:
- To propose a novel framework for genetic counseling interventions.
- To integrate an empowerment perspective with stress and coping theories.
- To enhance patient autonomy and decision-making in genetic counseling.
Main Methods:
- Utilizing Lazarus and Folkman's adaptation of stress and coping theory.
- Framing genetic counseling as an empowerment process.
- Developing tools to promote individual autonomy and decision-making.
Main Results:
- The proposed framework enhances patient autonomy.
- It provides individuals with tools for informed decision-making.
- It improves coping and adjustment through enhanced control and mastery.
Conclusions:
- An empowerment-based framework offers a structured approach to genetic counseling interventions.
- This model supports individuals in managing genetic information and its implications.
- It promotes better adjustment to genetic outcomes by fostering a sense of control.
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