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Updated: Apr 7, 2026

FISH for Pre-implantation Genetic Diagnosis
Published on: February 23, 2011
Embodied Knowledge and Making Sense of Prenatal Diagnosis
1Department of Epidemiology and Biostatistics, McGill University, Montreal, Quebec, Canada.
Women integrate biomedical data with personal beliefs and experiences to make decisions about prenatal genetic testing, like amniocentesis. This "embodied" knowledge is key, highlighting the importance of counselors understanding diverse patient perspectives.
Area of Science:
- Genetics
- Medical Sociology
- Women's Health
Background:
- Prenatal genetic testing, including amniocentesis, offers valuable diagnostic information.
- Understanding women's decision-making processes regarding these tests is crucial for effective genetic counseling.
Purpose of the Study:
- To explore how women make sense of and decide on prenatal genetic testing.
- To identify the factors influencing women's choices regarding amniocentesis.
Main Methods:
- Qualitative analysis of open-ended interviews with women offered amniocentesis.
- Focus on understanding the negotiation and integration of biomedical information.
Main Results:
- Women transform biomedical information, integrating it with personal instincts, beliefs, and experiences to form "embodied" knowledge.
- Decision-making processes, rather than the final test choice, reveal more similarities among women.
Conclusions:
- "Embodied knowledge" significantly influences decisions about prenatal genetic testing.
- Genetic counselors must recognize and validate women's diverse ways of knowing and experiencing to effectively support their choices.
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