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Protein-losing enteropathy in an infant with a lymphangiomyoma

A G Thomas1, D Livingstone, V Miller

  • 1Booth Hall Children's Hospital, Manchester, England.

Insights

A rare infant lymphangiomyoma caused intractable diarrhea and protein-losing enteropathy. Pancreatic enzyme therapy initially improved symptoms, but the condition later recurred and proved refractory to treatment.

Area of Science:

  • Pediatric Gastroenterology
  • Rare Diseases
  • Gastrointestinal Motility Disorders

Background:

  • Lymphangiomyoma is a rare benign tumor typically affecting adult women.
  • Infantile lymphangioma is exceptionally rare, with limited documented cases.
  • Protein-losing enteropathy presents with significant gastrointestinal protein loss and malnutrition.

Observation:

  • A 3-month-old infant presented with intractable diarrhea and protein-losing enteropathy.
  • The condition was found to be secondary to an undiagnosed lymphangiomyoma.
  • Enteral nutrition was not tolerated, necessitating parenteral nutrition for two months.

Findings:

  • Pancreatic enzyme supplementation led to rapid clinical improvement and normalized serum albumin levels.
  • The infant was successfully weaned from parenteral nutrition, with improvement in nutrient deficiencies.
  • A subsequent recurrence of symptoms occurred despite normal pancreatic function, indicating treatment refractoriness.

Implications:

  • This case highlights the first reported instance of lymphangiomyoma causing protein-losing enteropathy in an infant.
  • Pancreatic enzyme supplementation may offer a therapeutic option for similar cases, though not curative.
  • Further research is needed to understand the pathogenesis and develop effective treatments for infantile lymphangiomyoma-associated enteropathy.

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