The current state of cancer genetic counseling access and availability
Sara Knapke1, Joy Larsen Haidle2, Rebecca Nagy3
1GeneDx, Elmwood Park, New Jersey, USA.
Purpose:
Genetic risk assessment and counseling by a qualified genetics professional are recommended to ensure high-quality care for individuals at risk of hereditary cancer. Timely access to genetic services provided by a genetic counselor (GC) is essential, especially in cases where genetic testing results may affect impending surgical decisions.
Methods:
A survey of GCs who specialize in cancer genetics was performed to assess service delivery models and ability to accommodate urgent cases.
Results:
Over half of all respondents indicated that urgent patients can be seen for consultation the same day or within 1-2 business days, and almost all respondents indicated that urgent cases can be seen within 1 week. Most respondents indicated that urgent cases are seen by a GC only with no physician involved.
Conclusions:
The results of this survey of GCs demonstrate that timely access to cancer genetic counseling by GCs in an urgent setting is available.Genet Med 18 4, 410-412.
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