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Updated: Apr 5, 2026

TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
Published on: April 13, 2021
Integrating data from multiple sources for data completeness in a web-based registry for pediatric renal
Lennart Köster1, Kai Krupka2, Britta Höcker2
1Institute of Medical Biometry and Informatics, University Hospital of Heidelberg, Germany.
Abstract:
Patient registries are a useful tool to measure outcomes and compare the effectiveness of therapies in a specific patient population. High data quality and completeness are therefore advantageous for registry analysis. Data integration from multiple sources may increase completeness of the data. The pediatric renal transplantation registry CERTAIN identified Eurotransplant (ET) and the Collaborative Transplant Study (CTS) as possible partners for data exchange. Import and export interfaces with CTS and ET were implemented. All parties reached their projected goals and benefit from the exchange.
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