Validation of a contemporary adherence measure for children with Type 1 diabetes: the Diabetes Management

S N Mehta1, T R Nansel2, L K Volkening1

  • 1Pediatric, Adolescent and Young Adult Section, Genetics and Epidemiology Section, Joslin Diabetes Center, Boston, MA, USA.

Insights

The Diabetes Management Questionnaire effectively measures adherence in young people with Type 1 diabetes. It shows good reliability and correlates with better glycemic control, supporting its use in clinical practice.

Area of Science:

  • Pediatric Endocrinology
  • Behavioral Medicine
  • Psychometrics

Background:

  • Type 1 diabetes management in youth requires consistent adherence to complex regimens.
  • Assessing adherence is crucial for optimizing glycemic control and preventing complications.
  • Existing measures may not fully capture contemporary diabetes management strategies in young patients.

Purpose of the Study:

  • To evaluate the psychometric properties of the Diabetes Management Questionnaire (DMQ).
  • To establish the DMQ's reliability and validity as a self-report measure of adherence.
  • To assess the DMQ's utility in young individuals (8-18 years) with Type 1 diabetes and their caregivers.

Main Methods:

  • 273 parent-child dyads completed parallel versions of the DMQ.
  • The DMQ assesses adherence to diabetes management over the past month.
  • Psychometric properties including internal consistency and test-retest reliability were analyzed.

Main Results:

  • The DMQ demonstrated good internal consistency (Cronbach's alpha: 0.83 for parents, 0.79 for children).
  • Excellent test-retest reliability was found for parents (ICC=0.83) and good for children (ICC=0.65).
  • DMQ scores were inversely associated with HbA1c levels, indicating better adherence correlates with improved glycemic control.

Conclusions:

  • The Diabetes Management Questionnaire is a brief, valid, and reliable self-report tool.
  • It accurately measures adherence to contemporary diabetes self-management in youth aged 8-18 years.
  • The DMQ is suitable for use with patients on multiple daily injections or insulin pump therapy.
Abstract

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