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Validation of a contemporary adherence measure for children with Type 1 diabetes: the Diabetes Management
S N Mehta1, T R Nansel2, L K Volkening1
1Pediatric, Adolescent and Young Adult Section, Genetics and Epidemiology Section, Joslin Diabetes Center, Boston, MA, USA.
Insights
The Diabetes Management Questionnaire effectively measures adherence in young people with Type 1 diabetes. It shows good reliability and correlates with better glycemic control, supporting its use in clinical practice.
Area of Science:
- Pediatric Endocrinology
- Behavioral Medicine
- Psychometrics
Background:
- Type 1 diabetes management in youth requires consistent adherence to complex regimens.
- Assessing adherence is crucial for optimizing glycemic control and preventing complications.
- Existing measures may not fully capture contemporary diabetes management strategies in young patients.
Purpose of the Study:
- To evaluate the psychometric properties of the Diabetes Management Questionnaire (DMQ).
- To establish the DMQ's reliability and validity as a self-report measure of adherence.
- To assess the DMQ's utility in young individuals (8-18 years) with Type 1 diabetes and their caregivers.
Main Methods:
- 273 parent-child dyads completed parallel versions of the DMQ.
- The DMQ assesses adherence to diabetes management over the past month.
- Psychometric properties including internal consistency and test-retest reliability were analyzed.
Main Results:
- The DMQ demonstrated good internal consistency (Cronbach's alpha: 0.83 for parents, 0.79 for children).
- Excellent test-retest reliability was found for parents (ICC=0.83) and good for children (ICC=0.65).
- DMQ scores were inversely associated with HbA1c levels, indicating better adherence correlates with improved glycemic control.
Conclusions:
- The Diabetes Management Questionnaire is a brief, valid, and reliable self-report tool.
- It accurately measures adherence to contemporary diabetes self-management in youth aged 8-18 years.
- The DMQ is suitable for use with patients on multiple daily injections or insulin pump therapy.
Aims:
To evaluate the psychometric properties of the Diabetes Management Questionnaire, a brief, self-report measure of adherence to contemporary diabetes management for young people with Type 1 diabetes and their caregivers.
Methods:
A total of 273 parent-child dyads completed parallel versions of the Diabetes Management Questionnaire. Eligible children (aged 8-18 years) had Type 1 diabetes for ≥1 year. A multidisciplinary team designed the Diabetes Management Questionnaire as a brief, self-administered measure of adherence to Type 1 diabetes management over the preceding month; higher scores reflect greater adherence. Psychometrics were evaluated for the entire sample and according to age of the child.
Results:
The children (49% female) had a mean ± sd (range) age 13.3 ± 2.9 (8-18) years and their mean ± sd HbA1c was 71 ± 15 mmol/mol (8.6 ± 1.4%). Internal consistency was good for parents (α = 0.83) and children (α = 0.79). Test-retest reliability was excellent for parents (intraclass correlation coefficient =0.83) and good for children (intraclass correlation coefficient = 0.65). Parent and child scores had moderate agreement (intraclass correlation coefficient = 0.54). Diabetes Management Questionnaire scores were inversely associated with HbA1c (parents: r = -0.41, P < 0.0001; children: r = -0.27, P < 0.0001). Psychometrics were stronger in the children aged ≥13 years compared with those aged < 13 years, but were acceptable in both age groups. Mean ± sd Diabetes Management Questionnaire scores were higher among children who were receiving insulin pump therapy (n = 181) than in children receiving multiple daily injections (n = 92) according to parent (75.9 ± 11.8 vs. 70.5 ± 15.5; P = 0.004) and child report (72.2 ± 12.1 vs. 67.6 ± 13.9; P = 0.006).
Conclusions:
The Diabetes Management Questionnaire is a brief, valid self-report measure of adherence to contemporary diabetes self-management for people aged 8-18 years who are receiving either multiple daily injections or insulin pump therapy.
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