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A Machine Learning Approach to Design an Efficient Selective Screening of Mild Cognitive Impairment
Published on: January 11, 2020
Living With Ambiguity: A Metasynthesis of Qualitative Research on Mild Cognitive Impairment
Tim Gomersall1, Arlene Astell2, Louise Nygård3
1School of Health & Related Research, University of Sheffield, Sheffield, UK. nina.sperber@duke.edu.
Purpose Of The Study:
Mild Cognitive Impairment (MCI) is a diagnosis proposed to describe an intermediate state between normal cognitive aging and dementia. MCI has been criticised for its conceptual fuzziness, its ambiguous relationship to dementia, and the tension it creates between medical and sociological understandings of "normal aging".
Design And Methods:
We examined the published qualitative literature on experiences of being diagnosed and living with MCI using metasynthesis as the methodological framework.
Results:
Two overarching conceptual themes were developed. The first, MCI and myself-in-time, showed that a diagnosis of MCI could profoundly affect a person's understanding of their place in the world. This impact appears to be mediated by multiple factors including a person's social support networks, which daily activities are affected, and subjective interpretations of the meaning of MCI. The second theme, Living with Ambiguity, describes the difficulties people experienced in making sense of their diagnosis. Uncertainty arose, in part, from lack of clarity and consistency in the information received by people with MCI, including whether they are even told MCI is the diagnosis.
Implications:
We conclude by suggesting an ethical tension is always at play when a MCI diagnosis is made. Specifically, earlier support and services afforded by a diagnosis may come at the expense of a person's anxiety about the future, with continued uncertainty about how his or her concerns and needs can be addressed.
Insights
A diagnosis of Mild Cognitive Impairment (MCI) significantly impacts individuals
Area of Science:
- Gerontology
- Cognitive Neurology
- Qualitative Health Research
Background:
- Mild Cognitive Impairment (MCI) is a diagnostic category for individuals between normal aging and dementia.
- The MCI diagnosis faces criticism regarding its conceptual clarity and societal implications for aging.
- There is a noted tension between medical and sociological perspectives on normal aging.
Purpose of the Study:
- To explore the lived experiences of individuals diagnosed with and living with MCI.
- To understand the subjective impact of an MCI diagnosis on personal identity and daily life.
- To investigate the challenges faced by individuals in comprehending and navigating their MCI diagnosis.
Main Methods:
- A qualitative systematic review was conducted.
- Metasynthesis was employed as the methodological framework.
- Published qualitative literature on MCI experiences was examined.
Main Results:
- Two key themes emerged: 'MCI and myself-in-time' and 'Living with Ambiguity'.
- The diagnosis significantly altered individuals' self-perception and place in the world, influenced by social support and personal interpretation.
- Participants experienced difficulties in making sense of their diagnosis due to inconsistent information and uncertainty about their condition.
Conclusions:
- Making an MCI diagnosis involves an inherent ethical tension.
- Early support through diagnosis may be counterbalanced by increased anxiety regarding future uncertainty.
- Addressing the ongoing concerns and needs of individuals with MCI requires careful consideration of this ethical dilemma.
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