Patient-centered medical home for patients with complex congenital heart disease

Susan M Fernandes1, Lee M Sanders

  • 1aDivision of Pediatric Cardiology, Department of Pediatrics bDivision of Cardiovascular Medicine, Department of Medicine cDivision of General Pediatrics, Department of Pediatrics, Stanford University School of Medicine, Palo Alto, California, USA.

Insights

The patient-centered medical home (PCMH) model, based in primary care, shows promise for improving outcomes and quality of life for children with complex congenital heart disease (CHD) while reducing costs.

Area of Science:

  • Pediatric Cardiology
  • Healthcare Policy
  • Primary Care Medicine

Background:

  • The patient-centered medical home (PCMH) is a healthcare delivery model.
  • The Affordable Care Act promotes PCMH for outpatient care.
  • Current care for complex congenital heart disease (CHD) is often subspecialty-based.

Purpose of the Study:

  • To evaluate the potential benefits of the PCMH model for children with complex CHD.
  • To explore how PCMH can improve outcomes and reduce costs for CHD patients.

Main Methods:

  • Review of existing literature and healthcare models.
  • Analysis of the attributes of PCMH compared to current CHD care.
  • Consideration of noncardiac comorbidities in CHD patients.

Main Results:

  • Subspecialty clinics for complex CHD often lack PCMH attributes.
  • Patients with complex CHD frequently have noncardiac comorbidities.
  • A primary care-based PCMH could benefit these patients.

Conclusions:

  • A primary care-based PCMH model can improve clinical outcomes for complex CHD patients.
  • PCMH implementation may enhance patient satisfaction and quality of life.
  • Policy and practice changes are needed to facilitate PCMH access for CHD patients.
Abstract

Related Concept Videos

Cardiomyopathy V: Interprofessional Care01:29

Cardiomyopathy V: Interprofessional Care

Managing cardiomyopathy involves addressing underlying or precipitating causes, treating heart failure with medications, and implementing dietary changes and a balanced exercise and rest regimen.Lifestyle ModificationsCardiomyopathy patients should adopt a low-sodium diet to reduce fluid retention and manage heart failure. A personalized exercise and rest plan helps maintain physical fitness without overstraining the heart. Avoiding alcohol and tobacco is essential to prevent further damage to...
656
Cardiomyopathy III: Hypertrophic Cardiomyopathy01:29

Cardiomyopathy III: Hypertrophic Cardiomyopathy

Hypertrophic cardiomyopathy, or HCM, is an autosomal dominant genetic disorder characterized by asymmetric left ventricular hypertrophy without ventricular dilation. It is more common in men and is typically diagnosed in young, athletic adults.EtiologyHCM is primarily genetic and is caused by mutations in genes encoding sarcomeric proteins. Researchers have identified over 1400 mutations across at least 11 different genes. Among these, the most frequently occurring mutations are found in the...
732
Patient-centered Care01:13

Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
3.3K
Heart Failure V: Medical Management01:30

Heart Failure V: Medical Management

Medical Management of Acute Decompensated Heart Failure (ADHF)The primary goals of therapy for patients hospitalized with acute decompensated heart failure (ADHF) include:Relieving symptomsOptimizing volume statusSupporting oxygenation and ventilationMaintaining cardiac output (CO) and end-organ perfusionIdentifying and addressing the cause of ADHFPreventing complicationsProviding patient education on factors precipitating HF exacerbationPlanning for dischargeOngoing monitoring and assessment...
546
Mitral Stenosis III: Medical Management01:26

Mitral Stenosis III: Medical Management

Mitral stenosis, a condition marked by the narrowing of the mitral valve, necessitates an integrated approach for effective management. This approach includes preventative measures, medical therapy, and surgical interventions to reduce symptoms and prevent complications.PreventionPrevention of mitral stenosis primarily focuses on reducing the incidence of bacterial infections, particularly streptococcal infections, which can lead to rheumatic fever and subsequent valvular damage. Timely...
469
Cardiomyopathy II: Dilated Cardiomyopathy01:30

Cardiomyopathy II: Dilated Cardiomyopathy

Dilated cardiomyopathy, or DCM, is a progressive myocardial disorder characterized by ventricular chamber dilation and contractile dysfunction.EtiologyVarious factors can cause DCM, including hypertension and heavy alcohol intake, which contribute to the weakening and enlargement of the heart muscle. Viral infections, such as Coxsackievirus B, adenoviruses, and influenza, can lead to DCM by causing inflammation and damage to heart tissue. Certain chemotherapeutic agents, including daunorubicin,...
772