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Published on: February 10, 2022
Patient-centered medical home for patients with complex congenital heart disease
Susan M Fernandes1, Lee M Sanders
1aDivision of Pediatric Cardiology, Department of Pediatrics bDivision of Cardiovascular Medicine, Department of Medicine cDivision of General Pediatrics, Department of Pediatrics, Stanford University School of Medicine, Palo Alto, California, USA.
Insights
The patient-centered medical home (PCMH) model, based in primary care, shows promise for improving outcomes and quality of life for children with complex congenital heart disease (CHD) while reducing costs.
Area of Science:
- Pediatric Cardiology
- Healthcare Policy
- Primary Care Medicine
Background:
- The patient-centered medical home (PCMH) is a healthcare delivery model.
- The Affordable Care Act promotes PCMH for outpatient care.
- Current care for complex congenital heart disease (CHD) is often subspecialty-based.
Purpose of the Study:
- To evaluate the potential benefits of the PCMH model for children with complex CHD.
- To explore how PCMH can improve outcomes and reduce costs for CHD patients.
Main Methods:
- Review of existing literature and healthcare models.
- Analysis of the attributes of PCMH compared to current CHD care.
- Consideration of noncardiac comorbidities in CHD patients.
Main Results:
- Subspecialty clinics for complex CHD often lack PCMH attributes.
- Patients with complex CHD frequently have noncardiac comorbidities.
- A primary care-based PCMH could benefit these patients.
Conclusions:
- A primary care-based PCMH model can improve clinical outcomes for complex CHD patients.
- PCMH implementation may enhance patient satisfaction and quality of life.
- Policy and practice changes are needed to facilitate PCMH access for CHD patients.
Purpose Of Review:
Originally conceived by pediatricians as a model for the care of children with special healthcare needs, the 'patient-centered medical home' (PCMH) has been identified by the Affordable Care Act as a model for all future outpatient care delivery. Although few studies have demonstrated its efficacy in improving care for children with congenital heart disease (CHD), access to a PCMH is likely to improve CHD-patient outcomes, including global function and quality of life, while reducing healthcare costs.
Recent Findings:
To date, most patients with complex CHD have their care anchored in cardiology subspecialty-care clinics, which lack many of the attributes of a PCMH. Given that many of these patients have noncardiac morbidities, including neurocognitive impairment and multiorgan dysfunction, we believe such patients will benefit from a PCMH model of care based on primary care.
Summary:
The PCMH based on primary care for patients with complex CHD could result in improved clinical outcomes, improved patient satisfaction and quality of life as well as decreased healthcare costs. Policy and practice reform are required to increase CHD-patient access to a PCMH, based on primary-care settings.
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