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[Pfeiffer's syndrome]

Ceskoslovenska Pediatrie
|December 1, 1989
PubMed

Insights

Pfeiffer syndrome, a genetic disorder, presents with craniosynostosis and limb abnormalities. Early family screening is crucial for detecting carriers of the ACS gene due to variable expressivity.

Area of Science:

  • Genetics
  • Pediatrics
  • Medical Diagnostics

Background:

  • Pfeiffer syndrome is a rare genetic disorder characterized by premature fusion of skull bones (craniosynostosis) and distinctive limb abnormalities.
  • The syndrome exhibits variable expressivity, meaning affected individuals can display a wide range of symptoms and severity.

Observation:

  • A 2-month-old infant presented with classic clinical signs of Pfeiffer syndrome, including craniosynostosis and limb abnormalities, yet showed normal psychomotor development.
  • Further investigation within the infant's family revealed other affected members with diverse clinical manifestations of the syndrome.

Findings:

  • The study highlights the genetic basis of Pfeiffer syndrome and the importance of recognizing its varied presentation.
  • Variable expressivity complicates diagnosis, underscoring the need for thorough genetic evaluation across affected families.

Implications:

  • Comprehensive clinical, radiological (X-ray), and anthropometric assessments are vital for identifying gene carriers within families.
  • Early and accurate identification of carriers can facilitate genetic counseling and management strategies for Pfeiffer syndrome.

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