Children's palliative care in low- and middle-income countries

Julia Downing1, Richard A Powell2, Joan Marston3

  • 1International Children's Palliative Care Network, London, UK Makerere University, Kampala, Uganda.

Insights

Children require palliative care, but services are scarce in low- and middle-income countries where the need is greatest. This review highlights best practices and research gaps in children's palliative care (CPC) globally.

Area of Science:

  • Global Health
  • Pediatric Palliative Care
  • Health Equity

Background:

  • One-third of the global population is under 20 years old.
  • Children with life-limiting conditions require specialized palliative care services.
  • The majority of children's palliative care (CPC) is provided in high-income countries, despite 80% of global need residing in low- and middle-income countries (LMICs).

Purpose of the Study:

  • To review the current status of children's palliative care (CPC) services in LMICs.
  • To identify and highlight examples of best practice in CPC service models.
  • To assess the extant research landscape in the field of CPC within LMICs.

Main Methods:

  • Literature review of CPC services and research in LMICs.
  • Case study analysis of best practice models in Malawi, Indonesia, and Belarus.
  • Synthesis of findings on education, clinical practice, funding, and research.

Main Results:

  • CPC services are underdeveloped in most LMICs compared to high-income countries.
  • Examples of innovative and effective CPC service models exist in Malawi, Indonesia, and Belarus.
  • Significant gaps remain in research, education, clinical practice, and funding for CPC in LMICs.

Conclusions:

  • While adult palliative care has advanced, CPC in LMICs faces substantial challenges.
  • Further investment in education, clinical practice, funding, and research is critical to meet the global need for CPC.
  • Addressing disparities in CPC provision is essential for global health equity.

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