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Children's palliative care in low- and middle-income countries
Julia Downing1, Richard A Powell2, Joan Marston3
1International Children's Palliative Care Network, London, UK Makerere University, Kampala, Uganda.
Insights
Children require palliative care, but services are scarce in low- and middle-income countries where the need is greatest. This review highlights best practices and research gaps in children's palliative care (CPC) globally.
Area of Science:
- Global Health
- Pediatric Palliative Care
- Health Equity
Background:
- One-third of the global population is under 20 years old.
- Children with life-limiting conditions require specialized palliative care services.
- The majority of children's palliative care (CPC) is provided in high-income countries, despite 80% of global need residing in low- and middle-income countries (LMICs).
Purpose of the Study:
- To review the current status of children's palliative care (CPC) services in LMICs.
- To identify and highlight examples of best practice in CPC service models.
- To assess the extant research landscape in the field of CPC within LMICs.
Main Methods:
- Literature review of CPC services and research in LMICs.
- Case study analysis of best practice models in Malawi, Indonesia, and Belarus.
- Synthesis of findings on education, clinical practice, funding, and research.
Main Results:
- CPC services are underdeveloped in most LMICs compared to high-income countries.
- Examples of innovative and effective CPC service models exist in Malawi, Indonesia, and Belarus.
- Significant gaps remain in research, education, clinical practice, and funding for CPC in LMICs.
Conclusions:
- While adult palliative care has advanced, CPC in LMICs faces substantial challenges.
- Further investment in education, clinical practice, funding, and research is critical to meet the global need for CPC.
- Addressing disparities in CPC provision is essential for global health equity.
Abstract:
One-third of the global population is aged under 20 years. For children with life-limiting conditions, palliative care services are required. However, despite 80% of global need occurring in low- and middle-income countries (LMICs), the majority of children's palliative care (CPC) is provided in high-income countries. This paper reviews the status of CPC services in LMICs--highlighting examples of best practice among service models in Malawi, Indonesia and Belarus--before reviewing the status of the extant research in this field. It concludes that while much has been achieved in palliative care for adults, less attention has been devoted to the education, clinical practice, funding and research needed to ensure children and young people receive the palliative care they need.
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