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Implantation of Total Artificial Heart in Congenital Heart Disease
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A Heart Set on Living.

Ana Berlin1

  • 1Department of Surgery, Rutgers-New Jersey Medical School, Newark, New Jersey, USA.

Journal of Pain and Symptom Management
|September 20, 2015
PubMed
Summary
This summary is machine-generated.

Exploring poetry can help healthcare providers understand patient quality of life (QoL) and end-of-life preferences. This insight allows for more patient-centered care, honoring individual goals and values during difficult times.

Keywords:
Quality of lifeend-of-life carenarrative reflectionpatient-centered decision makingpoetry and medicinewill to live

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Area of Science:

  • Medical Humanities
  • Palliative Care
  • Bioethics

Background:

  • Quality of life (QoL) is subjective and complex, posing challenges for healthcare decision-making.
  • End-of-life care requires deep understanding of patient values and motivations.

Purpose of the Study:

  • To explore how artistic reflection, specifically poetry, can enhance clinicians' understanding of patient QoL.
  • To identify themes related to QoL, such as symptom burden, relationships, and the will to live, through narrative reflection.

Main Methods:

  • A narrative reflection prompted by poetry, following the death of a family member.
  • Exploration of themes including symptom burden, interpersonal dynamics during illness, and the will to live.

Main Results:

  • Poetry can serve as a powerful tool for physicians to gain insight into patients' life meanings and end-of-life attitudes.
  • Reflective practice fosters a deeper appreciation of factors influencing patient goals and preferences.

Conclusions:

  • Clinicians can develop more patient-centered QoL frameworks by understanding patients' underlying motivations.
  • Encouraging physicians to engage with art can improve their capacity to serve patients at the end of life.