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Published on: August 24, 2019
Higher perceived HRQoL in Moroccan children with asthma and their parents
Monique Theodora Maria Veenstra-van Schie1, Kelly Coenen2, Hendrik Maria Koopman2
1Groene Hart Ziekenhuis, Department of Pediatrics, Gouda, the Netherlands.
Insights
Dutch children with asthma reported lower health-related quality of life (HRQoL) than Moroccan children. This study highlights potential cultural and communication factors influencing HRQoL perceptions in pediatric asthma patients.
Area of Science:
- Pediatric pulmonology
- Health services research
- Cross-cultural psychology
Background:
- Health-related quality of life (HRQoL) is crucial for children with asthma.
- Understanding ethnic and cultural differences in HRQoL perception is essential for tailored healthcare.
- Previous research often indicates higher HRQoL in majority populations, necessitating further investigation.
Purpose of the Study:
- To compare perceived HRQoL between children with asthma of Moroccan and Dutch descent and their parents.
- To identify factors contributing to potential disparities in HRQoL reporting.
- To inform healthcare providers on improving communication and support for diverse pediatric asthma populations.
Main Methods:
- A cross-sectional study involving 33 children (aged 6-18) with asthma and their parents in the Netherlands.
- Assessment of generic and asthma-specific HRQoL using validated instruments (DUX-25, DISABKIDS, PAQLQ).
- Comparison of HRQoL scores between children of Moroccan and Dutch descent.
Main Results:
- Significant differences in DUX-25 subscales (physical, emotional, home functioning) were observed.
- Children and parents of Dutch descent reported lower HRQoL compared to those of Moroccan descent.
- Findings contrast with previous research, suggesting complex influencing factors.
Conclusions:
- Perceived HRQoL in pediatric asthma patients may be influenced by cultural dimensions (individualism-collectivism), social desirability, language barriers, and perceived miscomprehension.
- Healthcare providers should foster strong relationships with immigrant families to encourage open communication about physical and psychosocial concerns.
- Further research is needed to validate these findings and explore culturally sensitive interventions for pediatric asthma management.
Abstract:
We explored the differences in the perceived HRQoL between children with asthma from Moroccan and Dutch descent and their parents. In total 33 children (aged 6-18 years) from Moroccan (16) and Dutch descent (17) and their parents participated. All children were currently under treatment in a general hospital in the Netherlands. Generic and asthma specific HRQoL were assessed (DUX-25, DISABKIDS, PAQLQ). Significant differences were found on the DUX-25 subscales physical, emotional and home functioning. Children and parents from Dutch descent reported a lower HRQoL. The findings of this study are contrary with previous research. Results can be explained by the individualistic-collectivistic dimension, socially desirability, language and the feeling of miscomprehension. If this explanation makes sense health care workers have to invest in a good relationship with especially immigrant children and their parents, so they will have enough confidence to talk more openly about their physical as well as their psycho-social complaints.
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