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Parents' experiences of splinting programs for babies with congenital limb anomalies

Kim M Durlacher1,2,3, Cynthia Verchere4,5,6, Jill G Zwicker2,6,7,8

  • 1British Columbia Children's Hospital, Vancouver, Canada.

Journal of Pediatric Rehabilitation Medicine
|September 28, 2015
PubMed

Insights

Parental involvement in pediatric splinting programs for congenital limb anomalies is crucial. Addressing parents

Area of Science:

  • Pediatric Orthopedics
  • Rehabilitation Medicine
  • Child Development

Background:

  • Parent participation is vital for successful splinting programs in children with congenital limb anomalies.
  • Limited understanding exists regarding factors influencing parental engagement in these programs.

Purpose of the Study:

  • To explore parent experiences with participation in splinting programs for infants with congenital limb anomalies.
  • To identify factors influencing parental engagement in early childhood splinting interventions.

Main Methods:

  • Qualitative study utilizing interpretive description methodology.
  • Semi-structured interviews conducted with 10 families of children with congenital limb anomalies.
  • Purposive sampling from a pediatric tertiary care facility.

Main Results:

  • Key themes identified include adjustment experiences, the importance of timely information, value of support networks, and program-specific characteristics.
  • Parents highlighted the need for comprehensive and timely information.
  • Support systems and program design significantly impact parental involvement.

Conclusions:

  • Meeting parents' needs for information, support, and individualized care is essential for active participation.
  • Enhanced parent engagement in splinting programs leads to better outcomes for children with congenital limb anomalies.
  • Programmatic adjustments can improve parental involvement and child treatment success.
Abstract

Keywords:
Parentsinfantlimb anomaliesparticipationsplints

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