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Adolescents' Lived Experiences While Hospitalized After Surgery for Ulcerative Colitis
Ida Østrup Olsen1, Susanne Jensen, Lene Larsen
1Ida Østrup Olsen, MScN, RN, is Clinical Nurse Specialist, Department of Gastrointestinal Surgery, Aalborg University Hospital, Aalborg, Denmark. Susanne Jensen, SD, RN, is Clinical Teaching Nurse, Department of Gastrointestinal Surgery, Aalborg University Hospital, Aalborg, Denmark. Lene Larsen, RN, is Clinical Nurse, Department of Gastrointestinal Surgery, Aalborg University Hospital, Aalborg, Denmark. Erik Elgaard Sørensen, PhD, MScN, RN, is Head of Research, Clinical Nursing Research Unit, Aalborg Hospital Science and Innovation Center, Aalborg University Hospital; and Associate Professor, Clinical Institute, Aalborg University, Aalborg, Denmark.
Adolescents undergoing ulcerative colitis surgery face significant physical and mental challenges during hospitalization. Individualized nursing care is crucial to address their unique needs and improve their hospital experience.
Area of Science:
- Pediatric Surgery
- Gastroenterology
- Adolescent Health
Background:
- Adolescence is a critical developmental period marked by significant physical, emotional, and psychological changes.
- Ulcerative colitis significantly impacts adolescents' quality of life, often necessitating surgical intervention when medical treatments fail.
- There is a lack of research on adolescents' lived experiences during hospitalization following ulcerative colitis surgery.
Purpose of the Study:
- To identify and describe the lived experiences of adolescents hospitalized after surgery for ulcerative colitis.
- To understand the challenges and needs of this patient population during their postoperative hospital stay.
Main Methods:
- A qualitative study employing in-depth interviews with eight adolescents who underwent surgery for ulcerative colitis.
- Hermeneutic interpretation of meaning was used for analysis and interpretation of interview data.
Main Results:
- Three central themes emerged: 'Body: Out of order,' 'Seen and understood,' and 'Where are all the others?'
- Adolescents experienced significant physical and mental impairment post-surgery.
- Mental unpreparedness for surgical challenges led to avoidance of communication and social interaction.
Conclusions:
- Individualized nursing care, tailored to the adolescent's age, maturity, and specific needs, is essential.
- Further research is required to explore the implications of simultaneous illness and youth in the hospital setting for adolescent patients.
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