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onlineDeCISion.org: a web-based decision aid for DCIS treatment.

Elissa M Ozanne, Katharine H Schneider, Djøra Soeteman

    Breast Cancer Research and Treatment
    |October 18, 2015
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    Summary

    A new web-based decision aid, onlineDeCISion.org, helps women understand treatment options for Ductal Carcinoma In Situ (DCIS). It provides personalized recurrence and survival data to improve informed decision-making for breast cancer patients.

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    Area of Science:

    • Oncology
    • Medical Informatics
    • Decision Science

    Background:

    • Ductal Carcinoma In Situ (DCIS) diagnosis presents complex treatment choices for women.
    • Patients often lack accurate understanding of treatment risks and benefits, hindering informed decision-making.

    Purpose of the Study:

    • To develop a web-based decision aid for clinicians and patients regarding DCIS treatment.
    • To provide tailored information on recurrence risks and survival outcomes for various DCIS treatment strategies.

    Main Methods:

    • Development of a web-based decision aid, onlineDeCISion.org, guided by a theoretical framework and microsimulation model.
    • Incorporation of best practices for web-based decision tools.
    • Informed by semi-structured interviews and usability testing with multidisciplinary clinicians and a patient advocate.

    Main Results:

    • The onlineDeCISion.org tool features descriptions of standard DCIS treatments.
    • It includes visual projections of time-specific outcomes (preservation, recurrence, survival) and side-by-side treatment comparisons.
    • Clinicians expressed strong interest in integrating the decision aid into their practice.

    Conclusions:

    • onlineDeCISion.org is a user-centered, web-based decision aid designed to improve treatment decision-making for DCIS.
    • The tool provides essential information to support shared decision-making between clinicians and patients.
    • Clinician interest suggests potential for widespread adoption in clinical practice.