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Related Concept Videos

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Related Experiment Video

Updated: Mar 31, 2026

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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The consent process: Enabling or disabling patients' active participation?

Carole Doherty1, Charitini Stavropoulou2, Mark Nk Saunders3

  • 1University of Surrey, UK.

Health (London, England : 1997)
|October 22, 2015
PubMed
Summary
This summary is machine-generated.

Patients often defer to doctors in treatment decisions, viewing consent forms as legal protection rather than shared decision-making tools. This paternalistic perception hinders patient involvement, despite legal recognition of patients as informed actors.

Keywords:
UK National Health Servicecaregiversconsentpatients

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Area of Science:

  • Medical Ethics
  • Patient-Doctor Relationship
  • Health Law

Background:

  • Current standards aim for shared decision-making in medical treatment consent.
  • Limited empirical research exists on patient perspectives regarding consent's impact on participation.
  • Understanding patient attitudes is crucial for effective shared decision-making.

Purpose of the Study:

  • To examine patient attitudes towards the consent process.
  • To explore how these attitudes influence participation in medical decision-making.
  • To consider potential medico-legal implications of patient perceptions.

Main Methods:

  • Longitudinal data collection using semi-structured interviews and field observations.
  • Involved 35 patients and 19 caregivers in an English hospital.
  • Study conducted between February and November 2014.

Main Results:

  • Patients generally defer to doctors in treatment decisions.
  • Most patients and caregivers desired detailed information but did not expect it.
  • Patients perceived consent forms primarily as legal protection for doctors.

Conclusions:

  • Patients' paternalistic views on consent can impede shared decision-making.
  • Perceptions of consent forms as non-beneficial may lead to signing without full consideration.
  • This can undermine patient involvement, despite legal status as informed actors.