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Prolonging Support After Brain Death: When Families Ask for More
Ariane Lewis1, Panayiotis Varelas2, David Greer3
1Division of Neurocritical Care, Department of Neurology, NYU Langone Medical Center, 530 First Avenue, HCC-5A, New York, NY, 10016, USA. ariane.kansas.lewis@gmail.com.
Most US hospital brain death protocols do not address family objections to death by neurologic criteria. Developing guidelines for these complex situations is recommended to support families and staff.
Area of Science:
- Medical Ethics
- Neurology
- Healthcare Policy
Background:
- Family objections to brain death declarations are a complex ethical issue.
- Current approaches to managing family objections in brain death protocols are not well-understood.
Purpose of the Study:
- To investigate how US hospital protocols address family objections to brain death determination.
- To identify institutional practices regarding family objections to organ support after brain death.
Main Methods:
- A review of institutional brain death protocols from 331 US hospitals across 25 states and DC.
- Analysis of protocols to identify provisions for handling family objections to brain death declaration or organ support discontinuation.
Main Results:
- 77.9% of protocols failed to mention how to handle family objections.
- Accommodations included deferring declaration for religious, moral, social reasons, or family arrival.
- Recommendations varied, including seeking counsel, continuing support, or transferring care.
Conclusions:
- The majority of brain death protocols lack guidance on managing family objections.
- Establishing clear guidelines is crucial for managing these sensitive situations and reducing distress for families and healthcare professionals.
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