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Building Community Capacity in Bereavement Support.

Lauren J Breen1, Samar M Aoun1, Bruce Rumbold2

  • 11 Curtin University, Perth, Western Australia, Australia.

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|November 15, 2015
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Summary
This summary is machine-generated.

Bereaved family caregivers shared advice on preparing for grief, using social networks, and coping strategies. This experiential knowledge can enhance community bereavement support and palliative care services.

Keywords:
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Area of Science:

  • Palliative Care
  • Bereavement Studies
  • Community Health

Background:

  • Community capacity for bereavement support is underdeveloped, despite family caregivers' expressed need for information.
  • Existing evidence is limited on what information is most beneficial for those experiencing loss.

Purpose of the Study:

  • To inform bereavement support strategies by identifying advice from individuals bereaved through expected deaths in palliative care.
  • To gather practical insights from those with lived experience to guide future support initiatives.

Main Methods:

  • A questionnaire was distributed by funeral providers to clients 6-24 months post-service.
  • Data were collected from 678 respondents, with 265 having relatives in palliative care.
  • Open-ended questions explored advice for others facing similar situations.

Main Results:

  • 140 family caregivers provided advice, analyzed through content analysis.
  • Three key themes emerged: preparations for bereavement, utilizing social networks, and grief management strategies.
  • This qualitative data offers practical guidance for supporting bereaved individuals.

Conclusions:

  • Experiential knowledge from bereaved family caregivers is valuable for developing effective bereavement care.
  • Incorporating this advice into community education can upskill palliative care volunteers and the public.
  • Enhanced community support can better assist family caregivers navigating grief.