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Perceived support in parents of children with burns
1Department of Neuroscience (Psychiatry), Uppsala University, 751 85 Uppsala, Sweden.
Insights
Parents of pediatric burn patients often lack adequate support, particularly psychosocial support. This lack of support is linked to parental mental health and child
Area of Science:
- Pediatric burn care
- Psychosocial support
- Parental well-being
Background:
- Children with severe burns require extensive, long-term multiprofessional aftercare.
- Research on parental satisfaction with post-pediatric burn care and support is limited.
Purpose of the Study:
- To investigate parental perceptions of support following pediatric burns.
- To identify associations between perceived support and parent, child, and injury characteristics.
Main Methods:
- 101 parents of children (aged 0.4–17.8 years) completed questionnaires.
- Assessments included perceived support, parental psychological symptoms, and child's health.
- Time since injury ranged from 0.1 to 9.0 years.
Main Results:
- 21% of parents reported a lack of psychosocial, medical, societal, or family support.
- Lack of support was not linked to injury severity or sociodemographics.
- It was significantly associated with parental anxiety, depression, fear avoidance, and child's health ratings.
Conclusions:
- Perceived support levels were independent of burn severity and sociodemographic factors.
- Care providers should address parental psychological symptoms and concerns about child's health and safety.
- Increased attention to parental well-being and child's perceived vulnerability is crucial.
Objective:
Children sustaining burns that require treatment in a burn center have a need for multiprofessional aftercare services over a prolonged time. So far, there is little research into satisfaction with care and support after pediatric burns. The aim was to investigate parents' perception of support after pediatric burn and associations with parent, child and injury characteristics.
Method:
Parents (n=101) of children aged 0.4-17.8 years completed questionnaires on support, parent's psychological symptoms and health of the child. Time since injury was 0.1-9.0 years.
Results:
Perceived lack of psychosocial, medical, societal or family support was reported by 21% of the parents. Lack of support was not associated with injury or sociodemographic characteristics, but it was significantly associated with parents' symptoms of general anxiety, depression and injury-related fear avoidance, as well as parents' ratings of their child's general health and heat sensitivity.
Conclusion:
Perceived support did not differ on account of burn severity or sociodemographic status. However, care providers should be more attentive to and supportive of parents signaling poorer general health in their child and cognitive beliefs that the child is at risk for harm when active and parents who themselves show signs of psychological symptoms.
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