Myelomeningocele: comprehensive treatment
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1Alfred I. duPont Institute, Wilmington, DE 19899.
Insights
Lifelong management of myelomeningocele requires understanding developmental and aging effects on pediatric disabilities. This review covers interventions and an interdisciplinary model for comprehensive care.
Area of Science:
- Pediatric Rehabilitation
- Developmental Disabilities
- Spinal Cord Disorders
Background:
- Myelomeningocele management now spans the entire lifespan.
- Requires understanding of initial dysfunction, child development, and aging effects.
- Pediatric-onset disabilities present unique lifelong challenges.
Purpose of the Study:
- To discuss a model for interdisciplinary management of myelomeningocele.
- To review current medical, surgical, and behavioral interventions.
- To emphasize lifelong care goals for children with disabilities.
Main Methods:
- Literature review of current interventions.
- Discussion of an interdisciplinary care model.
- Analysis of developmental and aging impacts.
Main Results:
- Current interventions address various aspects of myelomeningocele.
- An interdisciplinary approach is crucial for lifelong management.
- Understanding developmental and aging factors is key.
Conclusions:
- Comprehensive, lifelong management is essential for myelomeningocele.
- An integrated interdisciplinary model optimizes outcomes.
- Rehabilitation specialists need a holistic understanding of patient needs.
Abstract:
The management of children born with myelomeningocele is now extended over an entire lifespan. Rehabilitation specialists managing these children must understand the initial anatomic dysfunction, its interaction with normal child development, and the effect of normal aging on pediatric-onset disabilities. A model for an interdisciplinary process that keeps the final goals of any child-onset disability in mind is discussed. A review of current medical, surgical, and behavioral interventions for these children is also presented.
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