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Long-Term Respiratory Support for Children and Adolescents in Austria: A National Survey

S Weiss1, A Van Egmond-Fröhlich1, N Hofer2

  • 1Department of Pediatrics, Kaiser Franz Josef Hospital, Vienna, Austria.

Klinische Padiatrie
|December 25, 2015
PubMed

Insights

Pediatric patients on long-term respiratory support (LTRS) in Austria are managed in 12 departments, with 111 children under 18 years requiring LTRS. This highlights the need for resource planning and structured transition to adult care.

Area of Science:

  • Pediatric Pulmonology
  • Respiratory Medicine
  • Public Health

Background:

  • Limited population-based data exists on pediatric patients requiring long-term respiratory support (LTRS) in Austria.
  • This study addresses the lack of information by identifying active pediatric departments and characterizing patients on LTRS.

Purpose of the Study:

  • To determine the number and characteristics of pediatric patients on LTRS in Austria.
  • To identify pediatric departments involved in managing children requiring LTRS.
  • To establish a baseline for future resource allocation and care planning.

Main Methods:

  • A national cross-sectional study was conducted.
  • Questionnaires were distributed to all pediatric departments across Austria.
  • Data was collected on the reference day of June 1st, 2013.

Main Results:

  • 12 out of 41 pediatric departments were actively managing LTRS patients.
  • On the reference date, 143 patients were on LTRS, with 111 (77.6%) being under 18 years old.
  • The prevalence of pediatric LTRS was 7.4 per 100,000, with neuromuscular disorders being the most common indication (44%).
  • Non-invasive ventilation (60.1%) was more common than invasive ventilation (33.6%), and 92.3% of LTRS was managed at home.

Conclusions:

  • Long-term respiratory support is a common strategy for children and adolescents with diverse medical conditions.
  • This census data is crucial for planning resource allocation for pediatric respiratory care.
  • The age distribution indicates a need for structured transition programs from pediatric to adult care services.
Abstract

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