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Biobank Finances: A Socio-Economic Analysis and Review.

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Summary

The financing of biobanks is complex and hinders biomedical research. A coordinated national biobanking infrastructure, funded publicly, is proposed to improve sample access and support research innovation.

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Area of Science:

  • Socio-economics
  • Biomedical Research
  • Biobanking Infrastructure

Background:

  • Inadequate supply of human biological samples hampers biomedical research, development, and innovation (RDI).
  • The full potential value of biological samples and associated data remains unrealized due to supply issues.
  • Existing biobanking financing models may contribute to these challenges.

Purpose of the Study:

  • To examine how biobank financing impacts the supply of human biological samples for research.
  • To propose a national solution for sustainable and coordinated biobanking.
  • To address the deficit in coordination and sustainability within diverse biobanking landscapes.

Main Methods:

  • Qualitative case study of institutional arrangements and cost models for biobanks.
  • Comprehensive literature analysis on biobanking practices and financing.
  • Informal consultations with experts in the field of biobanking and research.

Main Results:

  • A single, standard cost model is not applicable across the diverse range of biobanks.
  • Current biobanking systems exhibit a deficit in coordination and sustainability, coupled with excessive complexity.
  • The financing structures contribute to the inadequate supply of biological samples.

Conclusions:

  • A national biobanking distributed research infrastructure with a dedicated coordination center is essential.
  • Centralized public funding, potentially supplemented by industry, should finance the national infrastructure.
  • Proposed financing model: project-based costing for sample acquisition, central public funding for core activities, and user-paid marginal access costs.