Fathers' Experience With Autism Spectrum Disorder: Nursing Implications

Area of Science:

• Pediatric Psychology
• Family Studies
• Developmental Disabilities

Background:

• Autism spectrum disorder (ASD) presents lifelong challenges impacting family dynamics.
• Research on ASD caregivers predominantly focuses on mothers, neglecting fathers' unique experiences.
• Fathers play a vital role in therapeutic outcomes for children with ASD.

Purpose of the Study:

• To explore and articulate the lived experiences of fathers raising children with ASD.
• To identify the specific needs and resources required by fathers to actively engage in their role.
• To provide a voice for fathers in the context of ASD caregiving.

Main Methods:

• A qualitative, phenomenological case study approach was employed.
• Data collected from White, non-Hispanic fathers of children with ASD through open-ended questions.
• The Resiliency Model of Family Stress, Adjustment, and Adaptation guided the study.

Main Results:

• Fathers' experiences with ASD share similarities with those reported by mothers in previous research.
• Fathers described family adjustments and identified needs including financial support, teamwork, honesty, information, and time.
• Fathers reported experiencing stages of grief and loss comparable to those associated with bereavement.

Conclusions:

• Findings support the development of clinical interventions beneficial to both mothers and fathers of children with ASD.
• Healthcare professionals, particularly nurses, should actively listen to, educate, and support fathers.
• Resource materials and accessible information are vital for empowering fathers and enhancing family resilience in managing ASD challenges.