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Palliative Care as a Standard of Care in Pediatric Oncology
Meaghann S Weaver1,2, Katherine E Heinze3, Katherine P Kelly4
1Department of Oncology, Children's National Health System, Washington, DC.
Insights
This study reviewed pediatric palliative cancer care literature to develop a psychosocial standard. Key areas include symptom management, communication, and shared decision-making for improved care.
Area of Science:
- Palliative Care
- Pediatric Oncology
- Psychosocial Support
Background:
- Pediatric and adolescent cancer patients require specialized palliative care.
- Existing literature on psychosocial aspects of pediatric palliative cancer care is extensive but requires synthesis.
- A standardized approach is needed to improve care quality.
Purpose of the Study:
- To systematically review pediatric and adolescent palliative cancer care literature.
- To inform the development of a psychosocial standard for pediatric palliative cancer care.
- To identify key areas for improving psychosocial support in pediatric oncology.
Main Methods:
- Systematic literature review of four databases (1995-2015).
- Inclusion of 73 papers from an initial review of 209 papers.
- Synthesis of findings to identify critical themes.
Main Results:
- Urgent considerations include symptom assessment and intervention.
- Direct patient report is crucial for understanding needs.
- Effective communication and shared decision-making are vital components.
- Identified themes highlight the need for standardized assessments and interventions.
Conclusions:
- Standardizing palliative care assessments and interventions can enhance care quality.
- Improved psychosocial standards benefit children and adolescents with cancer.
- Family members also benefit from standardized, high-quality palliative care.
- This review provides a foundation for developing evidence-based psychosocial standards in pediatric oncology.
Abstract:
The study team conducted a systematic review of pediatric and adolescent palliative cancer care literature from 1995 to 2015 using four databases to inform development of a palliative care psychosocial standard. A total of 209 papers were reviewed with inclusion of 73 papers for final synthesis. Revealed topics of urgent consideration include the following: symptom assessment and intervention, direct patient report, effective communication, and shared decision-making. Standardization of palliative care assessments and interventions in pediatric oncology has the potential to foster improved quality of care across the cancer trajectory for children and adolescents with cancer and their family members.
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