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Published on: April 22, 2015
Service utilization in a sample of preschool children with autism spectrum disorder: A Canadian snapshot
J Volden1, E Duku2, C Shepherd1
1University of Alberta, Edmonton, Alberta;
Insights
Most preschool children with autism spectrum disorder (ASD) receive services soon after diagnosis, with developmental and behavioral therapies being common. However, service access and type vary significantly across Canadian provinces.
Area of Science:
- Pediatric Healthcare
- Developmental Pediatrics
- Autism Spectrum Disorder Research
Background:
- Autism Spectrum Disorder (ASD) is a neurodevelopmental condition affecting preschool-aged children.
- Understanding service utilization is crucial for early intervention and support.
- Limited data exists on the longitudinal service patterns for preschoolers diagnosed with ASD.
Purpose of the Study:
- To document the types and patterns of services received by preschool children diagnosed with ASD.
- To analyze service utilization in the five years following an ASD diagnosis.
- To identify variations in service provision across different Canadian provinces.
Main Methods:
- An inception cohort of 414 preschoolers diagnosed with ASD across five Canadian urban centers was studied.
- Parent/caregiver-reported service data was collected at four time points: diagnosis, 6 months, 12 months, and school entry.
- Services were categorized into 11 types, then grouped into four broader categories (no services, behavioral, developmental, general).
Main Results:
- Over 80% of children received services at diagnosis, increasing to nearly 95% by school entry.
- Developmental services (e.g., speech-language therapy) were most common initially.
- Combinations of behavioral and developmental services became more prevalent over time.
- Significant provincial variations in service provision were observed.
Conclusions:
- Preschoolers with ASD in urban areas generally access specialized services post-diagnosis.
- Marked disparities in service availability and type exist across provinces.
- Addressing provincial variations is essential for equitable ASD care.
Objective:
To describe services received by preschool children diagnosed with autism spectrum disorder (ASD) during the five-year period following their diagnosis.
Method:
An inception cohort of preschoolers diagnosed with ASD from Halifax (Nova Scotia), Montreal (Quebec), Hamilton (Ontario), Edmonton (Alberta) and Vancouver (British Columbia) were invited to participate. Parents/caregivers (n=414) described the services provided to their children at four time points: baseline (T1; within four months of diagnosis; mean age three years); six months later (T2); 12 months later (T3); and at school entry (T4). Data were first coded into 11 service types and subsequently combined into four broader categories (no services, behavioural, developmental and general) for analysis.
Results:
More than 80% of children at T1, and almost 95% at T4 received some type of service, with a significant number receiving >1 type of service at each assessment point. At T1, the most common service was developmental (eg, speech-language therapy). Subsequently, the most common services were a combination of behavioural and developmental (eg, intensive therapy based on applied behaviour analysis and speech-language therapy). Service provision varied across provinces and over time.
Discussion:
Although most preschool children with ASD residing in urban centres were able to access specialized services shortly after diagnosis, marked variation in services across provinces remains a concern.
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