Collaborative priority setting for human immunodeficiency virus rehabilitation research: A case report

Area of Science:

• Occupational therapy
• Public health research
• Community-based participatory research

Background:

• Establishing research priorities requires input from community members and stakeholders.
• Ensuring research aligns with community concerns is vital for relevance and impact.

Purpose of the Study:

• To identify priority research topics for the activity and community participation needs of people living with HIV.
• To meaningfully involve diverse stakeholders in priority setting for HIV research.

Main Methods:

• A 2-day forum convened people with HIV, researchers, service providers, and policymakers.
• Priority setting utilized World Café and Dotmocracy methodologies.
• Forum effectiveness was evaluated through dialogue and a post-project survey.

Main Results:

• Ten high-priority research topics were identified by participants.
• Stakeholder involvement yielded positive substantive, instrumental, personal, and normative outcomes.

Conclusions:

• The identified research priorities can inform future occupational therapy practice and research.
• This study highlights the value of collaborative approaches in addressing HIV-related needs.