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[End-of-Life Home Care for a Young Patient]

Yasuhiko Midorikawa1, Seiko Suzushino, Kiyokazu Tamotsu

  • 1Dept. of Surgery, Kureha General Hospital.

Insights

This case study highlights the challenges of end-of-life home care for young adults with malignant melanoma. It emphasizes the critical need for comprehensive support, including pain management and caregiver assistance, for this demographic.

Area of Science:

  • Oncology
  • Palliative Care
  • Geriatric Medicine

Background:

  • Malignant melanoma in young adults presents unique challenges due to their social and economic productivity.
  • Aggressive treatment over five years preceded the decision for palliative home care.

Observation:

  • A 31-year-old patient with advanced malignant melanoma received end-of-life home care.
  • The patient required intravenous pain management (oxycodone, steroids, anti-inflammatories, antianxiety drugs) due to inability to ingest oral medication.
  • The primary family caregiver sacrificed her employment to provide full-time care.

Findings:

  • Effective pain control was achieved, and the patient expressed gratitude towards his caregiver.
  • The patient survived for 26 days under home care.
  • Significant limitations exist in nursing care insurance and home help services for young patients.

Implications:

  • Young patients face substantial physical, mental, and social pain, necessitating tailored end-of-life care strategies.
  • Caregiver support, including financial and social aspects, is crucial for families managing young adults with terminal illnesses.
  • Policy review is needed to address the lack of adequate support systems for young patients requiring home-based palliative care.

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