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[End-of-Life Home Care for a Young Patient]
Yasuhiko Midorikawa1, Seiko Suzushino, Kiyokazu Tamotsu
1Dept. of Surgery, Kureha General Hospital.
Insights
This case study highlights the challenges of end-of-life home care for young adults with malignant melanoma. It emphasizes the critical need for comprehensive support, including pain management and caregiver assistance, for this demographic.
Area of Science:
- Oncology
- Palliative Care
- Geriatric Medicine
Background:
- Malignant melanoma in young adults presents unique challenges due to their social and economic productivity.
- Aggressive treatment over five years preceded the decision for palliative home care.
Observation:
- A 31-year-old patient with advanced malignant melanoma received end-of-life home care.
- The patient required intravenous pain management (oxycodone, steroids, anti-inflammatories, antianxiety drugs) due to inability to ingest oral medication.
- The primary family caregiver sacrificed her employment to provide full-time care.
Findings:
- Effective pain control was achieved, and the patient expressed gratitude towards his caregiver.
- The patient survived for 26 days under home care.
- Significant limitations exist in nursing care insurance and home help services for young patients.
Implications:
- Young patients face substantial physical, mental, and social pain, necessitating tailored end-of-life care strategies.
- Caregiver support, including financial and social aspects, is crucial for families managing young adults with terminal illnesses.
- Policy review is needed to address the lack of adequate support systems for young patients requiring home-based palliative care.
Abstract:
We report the case of a young patient(under 40 years)with a malignant tumor; this is an age when a person is involved in social activity and is productive. A variety of activity largely has a negative influence on family at death of such a patient. After fighting this illness for a long time, home medical care was administered, and I experienced a case of a 31-year-old patient with malignant melanoma who was administered end-of-life home care. He had a diagnosis of right leg malignant melanoma approximately 5 years ago. Palliative medical care was decided, after aggressive treatment for approximately 5 years, including an operation, and home medical care was hoped, after this was introduced at our department of surgery. I performed pain control in this patient after hospitalization at approximately one week and the patient was shifted to home medical care. The patient could only swallow water, and oral medication could not be ingested because the patient was bedridden. The mother who was the main caregiver quit her work and devoted herself for care. I performed pain control mainly by administering oxycodone and a steroid and an anti-inflammatory, which were given intravenously along with the antianxiety drug. During home medical care, I focused on pain control, but the patient expressed gratitude for the main caregiver that was witnessed by the family. The patient died 26 days after the initiation of at-home care. Nursing care insurance is not available for young patients, and home help is limited. I quit work for the caregiver, and including contrivance of the future life, there is much limitation with the aspect of the income. A younger patient experiences temper, as well as physical pain, enough for mental and social pain is necessary.
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