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Towards deep inclusion for equity-oriented health research priority-setting: A working model.

Bridget Pratt¹, Maria Merritt², Adnan A Hyder²

¹Johns Hopkins Bloomberg School of Public Health, USA; Johns Hopkins Berman Institute of Bioethics, USA; Nossal Institute of Global Health, University of Melbourne, Australia.

Social Science & Medicine (1982)

|January 27, 2016

Summary

National health research priority-setting must promote health equity through deep inclusion. A new model defines deep inclusion by breadth, qualitative equality, and high-quality non-elite participation for equitable research investments.

Keywords:

Health equity Health research Health systems research Inclusion Justice Priority-setting

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Area of Science:

Health Policy
Research Ethics
Health Equity

Background:

Growing consensus calls for aligning health research funding with national priorities.
Justice in research priority-setting necessitates promoting health equity.
Existing frameworks lack specific guidance for equity-oriented research priority-setting.

Purpose of the Study:

To propose requirements for equity-oriented national health research priority-setting.
To introduce and define a model of "deep inclusion" as a procedural component.
To guide policymakers in designing and assessing inclusive priority-setting processes.

Main Methods:

Applied concepts from deliberative democracy and development ethics.
Developed a model of deep inclusion with three dimensions: breadth, qualitative equality, and high-quality non-elite participation.
Used health systems research as a sustained example for illustration.

Main Results:

Deep inclusion involves not only who participates but also how and when non-elite stakeholders are involved.
The proposed model offers a framework for understanding and achieving meaningful stakeholder involvement.
Practical challenges to implementing deep inclusion were reviewed.

Conclusions:

Deep inclusion is crucial for equitable national health research priority-setting.
The model provides a practical tool for policymakers and stakeholders.
Despite implementation barriers, the model enhances the inclusivity and equity of research priority-setting processes.