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Befriending Everyday Life When Bringing Technology Into the Private Sphere.
Catharina Lindberg1, Cecilia Fagerström1, Ania Willman2
11 Blekinge Institute of Technology, Karlskrona, Sweden.
Qualitative Health Research
|February 6, 2016
Summary
Patients dependent on home medical technology find autonomy by integrating it into daily life. Key factors include managing their body, relationships, home environment, and time to maintain control over their care.
Area of Science:
- Phenomenology
- Medical Sociology
- Patient Experience
Background:
- Advanced medical technology enables home-based care for chronic conditions.
- Home healthcare presents unique challenges to patient autonomy.
- Understanding the lived experience of technology dependence is crucial.
Purpose of the Study:
- To explore the meaning of autonomy for individuals dependent on advanced medical technology at home.
- To identify how patients navigate daily life with integrated medical technology.
- To understand the impact of technology dependence on patient self-determination.
Main Methods:
- Phenomenological interview study.
- Qualitative analysis of participant narratives.
- Exploration of the lived experience of patients using medical technology at home.
Main Results:
- Autonomy is experienced through "befriending everyday life" with technology.
- Four constituents identified: befriending the lived body, depending on relationships, maintaining home privacy, and managing time.
- Illness-related loss of control over the lived body is a central challenge to autonomy.
Conclusions:
- Patients desire involvement and influence in their care to preserve autonomy.
- Integrating patients into the care process is vital for long-term chronic illness management.
- Supporting patient autonomy is essential when medical technology becomes part of daily life.
Keywords:
Giorgiadvanced home careautonomydecision makingethicsinterviewsphenomenologyqualitativetechnology, medicalMore Related Videos
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