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Parent health literacy and adherence-related outcomes in children with epilepsy
Angelia M Paschal1, Qshequilla P Mitchell2, Jereme D Wilroy1
1Department of Health Science, The University of Alabama, Tuscaloosa, AL, USA.
Insights
Parent health literacy significantly impacts treatment adherence in children with epilepsy. Higher health literacy in parents correlates with fewer missed medication doses and seizures, improving epilepsy management.
Area of Science:
- Pediatric Neurology
- Health Literacy Research
- Epilepsy Management
Background:
- The link between parental health literacy and treatment adherence in pediatric epilepsy is understudied.
- Factors influencing adherence, such as missed doses, appointments, and seizure frequency, require further investigation.
Purpose of the Study:
- To examine if parent health literacy predicts adherence-related factors in children with epilepsy (ages 1-12).
- To identify predictors of missed medication doses, missed appointments, and seizure frequency.
Main Methods:
- Cross-sectional study involving 146 parents/guardians of children with epilepsy in rural areas.
- Interviews were conducted, followed by univariate analyses (ANOVA) and multiple linear regressions.
Main Results:
- Parent health literacy was the strongest predictor for fewer missed medication doses and seizure occurrences.
- Higher health literacy scores were associated with better adherence.
- Household income also predicted fewer missed doses, but health literacy did not predict missed appointments.
Conclusions:
- Inadequate parent health literacy may be an independent risk factor for poor adherence in pediatric epilepsy.
- Targeted health literacy interventions are recommended to enhance epilepsy care and management in children.
Background:
The relationship between parent health literacy and adherence to treatment in children with epilepsy has not been fully explored. The purpose of this study was to determine whether parent health literacy and other variables predicted factors associated with adherence, such as missed medication doses, missed medical appointments, and seizure frequency, in children with epilepsy between 1 and 12 years old.
Methods:
It was hypothesized that parents with adequate parent health literacy would report fewer missed doses, missed appointments, and seizure occurrences. Using a nonexperimental, cross-sectional study design, interviews were conducted with 146 parents and guardians of children with epilepsy who resided in rural communities. Univariate analyses, including ANOVA, and multiple linear regressions were conducted.
Results:
Results indicated that parent health literacy was the strongest predictor of two of the adherence-related factors. Higher health literacy scores were associated with fewer missed medication doses and seizure occurrences. However, health literacy was not associated with missed medical appointments. Among other study variables, higher household income was also predictive of fewer missed doses.
Conclusion:
The study findings suggest that inadequate health literacy among parents may serve as an independent risk factor for adherence-related outcomes among children with epilepsy. Further research, as well as effective, targeted parent health literacy strategies used to improve epilepsy management and care in children, is recommended.
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