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Ethical decision making for high-risk infants. The parents' perspective
1School of Nursing, Creighton University, Omaha, Nebraska.
The Nursing Clinics of North America
|December 1, 1989
Summary
Parents of high-risk infants in the Neonatal Intensive Care Unit (NICU) need emotional support, not just rights. An ethic of care guides ethical decision-making and shared responsibility for infant well-being.
Area of Science:
- Neonatal Intensive Care Unit (NICU)
- Pediatric Ethics
- Family-Centered Care
Background:
- High-risk infants require intensive care, presenting ethical challenges for families.
- Parental experiences in the NICU are crucial for understanding ethical decision-making.
Purpose of the Study:
- To explore parents' perceptions of ethical dimensions in intensive newborn care.
- To propose a professional response based on an ethic of care for NICU families.
Main Methods:
- Qualitative study involving 32 families with high-risk infants.
- Analysis of parents' experiences and perspectives on NICU care.
Main Results:
- Families prioritized support and connection over solely focusing on rights or autonomy.
- Parents expressed a need for empathetic and caring professional interactions.
Conclusions:
- An ethic of care is essential for ethical decision-making in the NICU.
- Shared moral responsibility between professionals and families benefits high-risk infants.
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