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Published on: July 5, 2022
Management of children with type 1 diabetes during illness: a national survey
Astha Soni1, Juliana Chizo Agwu2, Neil Peter Wright3
1Department of Paediatrics, Southport and Ormskirk NHS Trust, Ormskirk, UK.
Insights
Effective sick-day management for children with type 1 diabetes is crucial. Current practices vary widely, indicating a need for standardized national guidelines and improved parent education on managing diabetes during illness.
Area of Science:
- Pediatrics
- Endocrinology
- Diabetes Management
Background:
- Home-based sick-day management is key to preventing diabetic ketoacidosis and hospitalizations in children.
- Current practices for managing type 1 diabetes during illness lack standardization.
Purpose of the Study:
- To review current practices in diabetes management during illness among pediatric diabetes units.
- To assess the adequacy of sick-day management guidelines and parent education.
Main Methods:
- A questionnaire survey was distributed to all pediatric diabetes units in the UK.
- Online questionnaires were completed by parents of children with type 1 diabetes.
Main Results:
- 93% of units had sick-day management guidelines, but advice on extra insulin dosing varied significantly.
- Only 15% of out-of-hours advice came from pediatric diabetes teams, with 45% from general pediatric registrars.
- 40% of parents were unsure how to manage high blood glucose and blood ketones simultaneously.
Conclusions:
- Significant variation exists in monitoring and advice provided during childhood diabetes illness.
- There is a clear need for national guidance and enhanced educational programs for parents on type 1 diabetes sick-day management.
Aim:
Adequate sick-day management at home can reduce the risk of progression to diabetic ketoacidosis and admission to hospital. The aim of this project was to review the management of diabetes during illness.
Method:
The Association of Children's Diabetes Clinicians (ACDC) carried out a questionnaire survey of all paediatric diabetes units. In addition, parents of children with type 1 diabetes completed an online questionnaire.
Results:
The survey of 127 units had a 73% response rate. Sick-day management guidelines were in place in 93%. All guidelines advised giving extra insulin during illness. In 67%, the extra dose was based on a fraction of total daily dose. 22% used units per kg body weight (U/kg). 21% used locally derived formulae to calculate extra dose of insulin. 3% of units advised only blood ketone monitoring. Although all units had an out-of-hours access policy for the families, 45% received advice from the general paediatric registrar. Only in 15%, the advice was directly from a member of the paediatric diabetes team. 680 parents completed the questionnaire. 86% reported receiving training on managing sick days. The majority (52.2%) receiving an informal session at diagnosis. 40% did not know what to do in the presence of raised blood glucose and high blood ketones.
Conclusions:
There was a wide variation in the practice of monitoring and advice given during illness. Both surveys highlight need for national guidance as well and to improve quality of sick-day rule education programmes for parents of children with type 1 diabetes.
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