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What are we telling the parents of extremely preterm babies?

Rosemarie Anne Boland1,2,3, Peter Graham Davis1,2,4, Jennifer Anne Dawson1,2,4

  • 1Murdoch Childrens Research Institute, Parkville, Victoria, Australia.

The Australian & New Zealand Journal of Obstetrics & Gynaecology
|February 26, 2016
PubMed

Insights

Healthcare providers often misperceive survival and disability rates for very preterm infants. This inaccurate information may lead to parents being misinformed about potential infant outcomes.

Area of Science:

  • Perinatal Medicine
  • Neonatology
  • Medical Education

Background:

  • Parental counseling and decision-making regarding preterm birth management rely on accurate information about infant outcomes.
  • Healthcare professionals' perceptions significantly influence the information conveyed to parents.

Purpose of the Study:

  • To assess the accuracy of perinatal healthcare providers' perceptions of survival and major neurosensory disability rates.
  • To compare perceptions for very preterm infants born in non-tertiary (outborn) versus tertiary (inborn) settings.

Main Methods:

  • A web-based survey was administered to diverse perinatal healthcare professionals in Victoria, Australia.
  • Perceived survival and disability rates were compared against population-based data for infants born at 24 and 28 weeks' gestation.
  • Disability rate comparisons spanned multiple time periods (1991-2005).

Main Results:

  • Respondents generally underestimated survival and overestimated major neurosensory disability rates for both outborn and inborn very preterm infants.
  • Outborn infants were perceived to have poorer survival and higher disability rates compared to inborn infants.
  • Response rates varied significantly across professional groups and settings.

Conclusions:

  • A significant number of clinicians overestimate adverse outcomes for very preterm infants.
  • Inaccurate perceptions may lead to the misinforming of parents regarding their child's prognosis.
  • Improved education on neonatal outcomes is crucial for accurate parental counseling.
Abstract

Keywords:
counsellingextremely preterm infantmortalityneurodevelopmental disabilityoutcomes

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