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Perceived Impact of a Self-Management Program for Fatigue in Multiple Sclerosis: A Qualitative Study
Hilda Mulligan1, Amanda Wilkinson1, Jessie Snowdon1
1Centre for Health, Activity, and Rehabilitation Research, School of Physiotherapy, University of Otago, Dunedin, New Zealand (HM, AW); and Multiple Sclerosis and Parkinson's Society of Canterbury Inc, Christchurch, New Zealand (JS).
The Minimise Fatigue, Maximise Life (MFML) program helped multiple sclerosis (MS) patients manage fatigue. Participants successfully integrated self-management skills, improving personal, family, and community life.
Area of Science:
- Neurology
- Rehabilitation Science
- Public Health
Background:
- Fatigue is a primary debilitating symptom in multiple sclerosis (MS).
- A lack of cohesive support for MS fatigue management existed in New Zealand.
- The Minimise Fatigue, Maximise Life (MFML) program was developed to address this gap.
Purpose of the Study:
- To explore the perceived impact of the MFML program on participants.
- To evaluate the effectiveness of a group-based fatigue self-management program for MS.
Main Methods:
- Semistructured individual telephone interviews were conducted.
- Interviews occurred at 1 month (n=23) and 3 months (n=11) post-program.
- Qualitative thematic analysis was used to analyze interview data.
Main Results:
- Participants reported achieving behavior change to manage MS fatigue.
- Participants experienced whole-of-life benefits from the program.
- These themes indicate perceived positive outcomes and benefits.
Conclusions:
- The MFML program demonstrated a positive impact on participants' lives.
- Participants successfully integrated self-management skills into daily routines.
- The program enhanced personal, family, and community participation for individuals with MS.
