Evaluating a pilot paediatric hospice-at-home service: a literature review

Rowan Hillis1, Julie Ling2, Claire Quinn3

  • 1Research Assistant, School of Nursing, Midwifery and Health Systems, University College Dublin, Ireland.

Insights

This review outlines essential elements for evaluating a pediatric hospice-at-home pilot program. It provides a conceptual model for assessing effectiveness, efficiency, and sustainability in integrated pediatric palliative care.

Area of Science:

  • Palliative Care
  • Healthcare Program Evaluation
  • Pediatric Healthcare

Background:

  • Literature review on designing evaluations for pediatric hospice-at-home pilot programs.
  • Examined existing literature in pediatric palliative care.
  • Explored adult palliative care for evaluation tool design insights.

Purpose of the Study:

  • To provide practitioners with an overview of key components for evaluating a pediatric hospice-at-home pilot.
  • To assess the effectiveness, efficiency, and sustainability of the program.
  • To highlight the role and impact of each component on integrated care delivery.

Main Methods:

  • Two-stage literature review process.
  • Stage 1: Focused on pediatric palliative care literature.
  • Stage 2: Expanded to adult palliative care literature for evaluation insights.

Main Results:

  • A conceptual model was developed to illustrate pilot development stages for evaluation.
  • The model emphasizes each component's role and impact on integrated care.
  • Findings highlight clarity and transparency in the evaluation process.

Conclusions:

  • The conceptual model offers a comprehensive overview for all pilot stakeholders.
  • Effective evaluation design is crucial for successful pediatric hospice-at-home programs.
  • The findings support the development of sustainable and efficient integrated care models.

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