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Evaluating a pilot paediatric hospice-at-home service: a literature review
Rowan Hillis1, Julie Ling2, Claire Quinn3
1Research Assistant, School of Nursing, Midwifery and Health Systems, University College Dublin, Ireland.
Insights
This review outlines essential elements for evaluating a pediatric hospice-at-home pilot program. It provides a conceptual model for assessing effectiveness, efficiency, and sustainability in integrated pediatric palliative care.
Area of Science:
- Palliative Care
- Healthcare Program Evaluation
- Pediatric Healthcare
Background:
- Literature review on designing evaluations for pediatric hospice-at-home pilot programs.
- Examined existing literature in pediatric palliative care.
- Explored adult palliative care for evaluation tool design insights.
Purpose of the Study:
- To provide practitioners with an overview of key components for evaluating a pediatric hospice-at-home pilot.
- To assess the effectiveness, efficiency, and sustainability of the program.
- To highlight the role and impact of each component on integrated care delivery.
Main Methods:
- Two-stage literature review process.
- Stage 1: Focused on pediatric palliative care literature.
- Stage 2: Expanded to adult palliative care literature for evaluation insights.
Main Results:
- A conceptual model was developed to illustrate pilot development stages for evaluation.
- The model emphasizes each component's role and impact on integrated care.
- Findings highlight clarity and transparency in the evaluation process.
Conclusions:
- The conceptual model offers a comprehensive overview for all pilot stakeholders.
- Effective evaluation design is crucial for successful pediatric hospice-at-home programs.
- The findings support the development of sustainable and efficient integrated care models.
Abstract:
Background: This literature review aims to offer practitioners an overview of the key components involved in designing the evaluation of a paediatric hospice-at-home pilot that will assess the effectiveness, efficiency and sustainability of the programme. The literature was reviewed in two stages: the first examined existing literature in the area of paediatric palliative care. The second looked at the wider field of adult palliative care to gain further insights into evaluation tool design. The findings are presented as a conceptual model to highlight each component of the pilot development stage as identified for evaluation purposes, emphasising their role and impact on the resultant delivery of integrated care. The clarity and transparency of this model offers a comprehensive overview of the evaluation process to all involved in the pilot.
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