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Educating children and families about growth hormone deficiency and its management: part 2

Jacqueline Collin1, Amanda Whitehead2, Jenny Walker2

  • 1King's College London.

Nursing Children and Young People
|March 9, 2016
PubMed

Insights

Paediatric endocrine nurse specialists (PENS) build strong partnerships with families managing growth hormone deficiency (GHD). Effective education empowers children and families to manage growth hormone treatment (GHT) according to developmental needs.

Area of Science:

  • Pediatric Endocrinology
  • Nursing Science

Background:

  • Growth hormone deficiency (GHD) is a chronic condition requiring long-term management.
  • Paediatric endocrine nurse specialists (PENS) play a crucial role in supporting families.
  • Building trusting, long-term partnerships is essential for successful GHD management.

Purpose of the Study:

  • To highlight the educational role of PENS in managing growth hormone treatment (GHT).
  • To emphasize the importance of tailoring GHD education to a child's developmental stage.
  • To explore how PENS foster family expertise and confidence in GHT management.

Main Methods:

  • This article is the second of a two-part series focusing on the PENS's educational role.
  • It builds upon the foundational aspects of GHD and PENS partnerships discussed in Part 1.
  • The focus is on the practical application of education in GHT management for children and families.

Main Results:

  • Ongoing education is vital for children and families managing GHD.
  • Information delivery must adapt to the evolving needs of children as they grow.
  • Respecting and recognizing families' increasing competence strengthens the therapeutic relationship.

Conclusions:

  • The PENS's educational role is central to empowering families in GHD and GHT management.
  • Developmentally appropriate education fosters self-management and long-term adherence to treatment.
  • Strong nurse-family partnerships are built on mutual respect and tailored informational support.

Keywords:
child developmentchild healthendocrine nurse specialistgrowth hormone deficiencygrowth hormone therapypaediatricsparents

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