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Facilitating and assessing progress toward independence: SPARX.

D J Lollar1, J K Reinoehl, A T Leverette

  • 1Shepherd Spinal Center, Atlanta, Georgia.

Zeitschrift Fur Kinderchirurgie : Organ Der Deutschen, Der Schweizerischen Und Der Osterreichischen Gesellschaft Fur Kinderchirurgie = Surgery in Infancy and Childhood
|December 1, 1989
PubMed
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Children with spina bifida need support for independent behavior. The Independent Behavior Inventory (IBI) measures dimensions like problem-solving and self-help, showing promising reliability and validity for clinical use.

Area of Science:

  • Pediatric rehabilitation
  • Developmental psychology
  • Assistive technology

Background:

  • Children with spina bifida are increasingly surviving and thriving physically.
  • A growing need exists to foster independent behaviors in this population.
  • Dependency dynamics can hinder autonomous functioning in young individuals.

Purpose of the Study:

  • To develop a measurement tool for assessing dimensions contributing to independent behavior in children with spina bifida.
  • To address the need for quantifying factors that promote autonomy.
  • To support the development of effective independence-training programs.

Main Methods:

  • Development of the Independent Behavior Inventory (IBI) as an outgrowth of the SPARX program.
  • Focus on key dimensions: problem-solving, communication, self-help, and family support.

Related Experiment Videos

  • Computation of reliability and validity statistics on a small sample.

    • Main Results:

    • The Independent Behavior Inventory (IBI) was developed.
    • Preliminary reliability and validity statistics appear promising.
    • The instrument targets crucial dimensions for independent functioning.

    Conclusions:

    • The IBI shows potential as a valuable tool for assessing independent behavior in children with spina bifida.
    • Early intervention with families is encouraged to facilitate independence.
    • Clinical use of the IBI is recommended to guide therapeutic strategies.