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Updated: Mar 23, 2026

Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
"Getting the Knowledge Right": Patient Communication, Agency, and Knowledge
1English Department, West Virginia University, PO Box 6296, Morgantown, WV, 26506-6296, USA. cgouge@wvu.edu.
Abstract:
In 2013, in accordance with a provision in the Patient Protection and Affordable Care Act (2010), the U.S. government began fining hospitals with "excessive" patient readmission rates. Those working to respond to this issue have identified discharge communication with patients as a critical component. In response to this exigency and to contribute to the conversation in the medical humanities about the field's purview and orientation, this article analyzes studies of and texts about communication in health and medicine, ultimately arguing that the on-going circulation of compliance rhetoric and assumptions has limited efforts to improve patient communication. The article, furthermore, considers that humanist ideals of agentic action, the patient-centered care movement's emphasis on the patient, and biomedicine's tendency to treat evidence-based knowledge as fixed and given may have combined to support a rationale for using patient adherence to treatment guidelines as metrics in measurement studies designed to identify effective communication strategies. Finally, the article proposes that those working in the medical humanities consider the value of interdisciplinary posthumanist scholarship-specifically, its treatment of agency and knowledge as emergent, distributed, and contingent-and its potential to transform or extend in productive ways the conversation about what constitutes effective communication with patients.
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