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The Participant-Reported Implementation Update and Score PRIUS: A Novel Method for Capturing Implementation-Related Data Over Time
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What patients do and their impact on implementation.

Annette Boaz1, Glenn Robert2, Louise Locock3

  • 1Centre for Health and Social Care Research, St George's, University of London, London, UK and Kingston University, London, UK.

Journal of Health Organization and Management
|April 8, 2016
PubMed
Summary
This summary is machine-generated.

Patients can actively participate in healthcare quality improvement by taking on various co-design roles. Facilitation is key to supporting their meaningful engagement as partners in service implementation and enhancement.

Keywords:
Health servicesImplementationPatient-focused careQuality improvementService quality

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Area of Science:

  • Healthcare Improvement
  • Patient Engagement
  • Co-design Methodologies

Background:

  • Limited literature exists on patient involvement in healthcare implementation processes.
  • Understanding diverse patient roles is crucial for effective quality improvement.

Purpose of the Study:

  • To explore the roles adopted by 63 patients in quality improvement interventions.
  • To analyze the impact of patient roles on implementation processes and outcomes.

Main Methods:

  • Cross-case ethnographic comparison.
  • Experience-based Co-design (EBCD) applied in two UK NHS Trusts.

Main Results:

  • Patients adopted varied roles, from sharing experiences to co-developing and implementing solutions.
  • Patient-led changes were often small-scale but provided innovative ideas and catalyzed staff attitudinal shifts.
  • Patient involvement acted as a catalyst for broader organizational and attitudinal changes.

Conclusions:

  • Patient engagement requires tailored support and flexible facilitation for meaningful partnership.
  • Different roles suit individual patients, who may engage at various stages of co-design.
  • Active patient and carer roles in service improvement are feasible and valuable, especially with co-design approaches.