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A palliative care link nurse programme in Mulago Hospital, Uganda: an evaluation using mixed methods
Julia Downing1, Mwazi Batuli2, Grace Kivumbi2
1Makerere University, PO Box 7757, Kampala, Uganda. julia.downing792@btinternet.com.
The palliative care link-nurse program significantly boosted nurses' confidence and improved patient care by integrating palliative care (PC) into general hospital services. This model effectively strengthened healthcare systems and expanded access to essential PC for patients with life-limiting illnesses.
Area of Science:
- Healthcare Systems Strengthening
- Palliative Care Integration
- Nursing Education and Practice
Background:
- Universal access to palliative care (PC) necessitates integrating PC services and empowering the healthcare workforce.
- In 2010, Mulago Hospital, Uganda, reported 46% of patients had life-limiting illnesses with 96% needing PC.
- The Makerere/Mulago Palliative Care Unit (MPCU) established a link-nurse model to equip hospital nurses with generalist PC skills.
Purpose of the Study:
- To evaluate the impact and effectiveness of the palliative care link-nurse program at Mulago Hospital.
- To assess the program's role in empowering nurses and integrating PC into general services.
- To determine the program's contribution to health systems strengthening in a resource-limited setting.
Main Methods:
- Mixed-methods evaluation combining qualitative and quantitative data.
- Pre- and post-training confidence assessments, course evaluations, and clinical guideline audits.
- Review of link-nurse activities, patient documentation, and Most Significant Change (MSC) technique, including interviews.
Main Results:
- Nurses showed a significant increase in confidence post-training (p < 0.001).
- Link nurses managed 2113 (86%) of 2447 identified PC patients between July 2012 and December 2013.
- PC patient numbers at the hospital increased from 611 (2011) to 1788 (2013), with 50% of wards utilizing clinical guidelines.
Conclusions:
- The link-nurse program offers a practical model for integrating PC into generalist healthcare services.
- The program effectively strengthens health systems and improves PC delivery in similar contexts.
- Recommendations include ongoing program development and integration into medical and nursing education.
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