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Coping with a coeliac diet after adolescence
J Kokkonen1, A Viitanen, S Similä
1Department of Paediatrics, University of Oulu, Finland.
Helvetica Paediatrica Acta
|February 1, 1989
Summary
Most adults diagnosed with coeliac disease (CD) in childhood maintain a gluten-free diet. Better knowledge of CD and diet correlates with adherence, suggesting a need for ongoing patient education.
Area of Science:
- Gastroenterology
- Dietary Science
- Public Health
Background:
- Coeliac disease (CD) requires lifelong adherence to a strict gluten-free diet.
- Long-term dietary compliance in adults diagnosed in childhood is not well-documented.
Purpose of the Study:
- To assess the long-term adherence to a gluten-free diet in adults diagnosed with coeliac disease during childhood.
- To identify factors influencing dietary compliance in this population.
Main Methods:
- A questionnaire was sent to 45 adults (aged 18-26) diagnosed with CD in childhood.
- The questionnaire assessed current dietary practices and knowledge of CD and the gluten-free diet.
Main Results:
- 93% of participants responded to the questionnaire.
- 64% maintained a strict gluten elimination diet, while 36% partially or completely failed.
- Good knowledge of CD and the diet was associated with better adherence.
- No correlation was found between age at diagnosis, social class, education, or social status and dietary compliance.
Conclusions:
- A significant majority of adults diagnosed with CD in childhood continue to adhere to a gluten-free diet.
- Patient knowledge is a key factor in maintaining dietary compliance.
- There is a need for practical, ongoing education and support for coeliac disease patients.