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A meta-synthesis on parenting a child with autism
Khim Lynn Ooi1, Yin Sin Ong1, Sabrina Anne Jacob1
1School of Pharmacy, Monash University Malaysia, Bandar Sunway, Selangor, Malaysia.
Neuropsychiatric Disease and Treatment
|April 23, 2016
Summary
Parenting a child with autism presents challenges impacting family life. Supporting the entire family is crucial for well-being and quality of life, not just the child.
Area of Science:
- Child Psychology
- Developmental Disorders
- Family Studies
Background:
- Autism Spectrum Disorder (ASD) presents lifelong challenges for families.
- Parenting a child with ASD involves significant emotional and practical considerations.
- Understanding parental experiences is key to improving support systems.
Purpose of the Study:
- To explore parental perspectives on raising children with autism.
- To gain insights into parental adaptations, beliefs, and experiences.
- To assess perceptions of health and educational services for families affected by autism.
Main Methods:
- A meta-synthesis of qualitative studies was conducted.
- Systematic searches of six major databases were performed up to September 2014.
- Included studies focused on parents' perceptions of care for children under 12 with autism.
Main Results:
- Four core themes emerged: The Parent, Impact on the Family, Social Impact, and Health and Educational Services.
- Parents face numerous challenges across various care aspects.
- These challenges significantly impact parental stress and adaptation.
Conclusions:
- Healthcare should adopt a family-centered approach.
- Support services must address the needs of the entire family unit.
- This holistic approach is essential for family well-being and quality of life post-autism diagnosis.
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