Developmental Care in North American Pediatric Cardiac Intensive Care Units: Survey of Current Practices

Erica Sood1, Wilma M Berends, Jennifer L Butcher

  • 1Pediatrics, Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania, and Nemours Cardiac Center, Alfred I. duPont Hospital for Children, Wilmington, Delaware (Dr Sood); Johns Hopkins Medicine International, Baltimore, Maryland (Ms Berends); Pediatrics, University of Michigan Medical School, Ann Arbor, and C.S. Mott Children's Hospital, Ann Arbor, Michigan (Dr Butcher); Cardiac Nursing, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania (Dr Lisanti); Pediatric Nursing, University of Pennsylvania School of Nursing, Philadelphia (Dr Medoff-Cooper); Pediatrics and Psychiatry, Harvard Medical School, and Division of Developmental Medicine, Boston Children's Hospital, Boston, Massachusetts (Dr Singer); Pediatrics, School of Medicine, University of Missouri-Kansas City, and Division of Developmental and Behavioral Sciences, Children's Mercy, Kansas City, Missouri (Dr Willen); and Psychiatry, Harvard Medical School, and Department of Psychiatry, Boston Children's Hospital, Boston, Massachusetts (Dr Butler).

Insights

Developmental care in pediatric cardiac intensive care units (CICUs) is inconsistent, with many lacking formal committees or rounds. Successful implementation requires leadership commitment, staff education, and family-centered policies.

Area of Science:

  • Pediatric critical care medicine
  • Developmental psychology
  • Neonatal nursing

Background:

  • Developmental care practices in pediatric cardiac intensive care units (CICUs) remain largely undescribed.
  • Understanding current practices is crucial for improving infant outcomes.

Purpose of the Study:

  • To characterize the current state of developmental care practices in North American pediatric CICUs.
  • Identify variations and commonalities in care strategies.

Main Methods:

  • A 47-item online survey was distributed to 35 dedicated pediatric CICUs.
  • Knowledgeable staff members completed the survey, yielding a response rate of 80% (28 CICUs).

Main Results:

  • 89% of CICUs reported efforts to promote developmental care, but only 50% had a dedicated committee and 43% held developmental rounds.
  • Practices varied significantly regarding environmental factors like sound levels (43%) and quiet times (21%).
  • While care clustering (82%) and self-soothing support (86%) were common, parental involvement was inconsistent, and formal infant holding policies were lacking in over half of units.

Conclusions:

  • Successful implementation of developmental care in CICUs necessitates strong leadership, comprehensive staff education, and robust family support.
  • Developing consistent policies is essential to standardize practices and maximize benefits for infants with congenital heart disease.
  • Further research is needed to evaluate the long-term effects of these practices on infant neurodevelopmental outcomes.
Abstract

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