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Systemic Sclerosis and Perceptions of Quality in Primary Care
Ashley L Toci1, J Madison Hyer2, Richard M Silver1
1Division of Rheumatology and Immunology, Department of Medicine, Medical University of South Carolina, Charleston, South Carolina.
Most systemic sclerosis (SSc) patients are satisfied with primary care, but some report inadequate monitoring of key symptoms. Early recognition of SSc complications by primary care providers (PCPs) is vital for patient outcomes.
Area of Science:
- Rheumatology
- Internal Medicine
- Patient Care
Background:
- Systemic sclerosis (SSc) requires early recognition of organ involvement for better patient outcomes.
- Primary care providers (PCPs) play a crucial role in identifying early SSc symptoms.
- Patient and PCP awareness is key to managing SSc complications.
Purpose of the Study:
- To survey SSc patients about their primary care quality.
- To assess if SSc diagnosis creates barriers to satisfactory care.
- To understand patient perceptions of primary care related to scleroderma.
Main Methods:
- A mail survey was distributed to 525 SSc patients.
- Questionnaires focused on demographics and primary care perceptions.
- 140 patients responded to the survey.
Main Results:
- Most respondents (74.5%) did not perceive SSc as a barrier to care.
- A majority (81.3%) felt their medical concerns were addressed despite SSc.
- Perceived barriers were linked to female sex, younger age, and lower care quality.
Conclusions:
- SSc patients generally value their primary care.
- Some patients desire closer PCP monitoring for blood pressure, reflux, and shortness of breath.
- Enhanced PCP education on SSc monitoring is needed for early detection of organ involvement.
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