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Improving Care And Research Electronic Data Trust Antwerp (iCAREdata): a research database of linked data on
Annelies Colliers1, Stefaan Bartholomeeusen1, Roy Remmen1
1Department of Primary and Interdisciplinary Care (ELIZA) - Centre for General Practice (CHA), Faculty of Medicine and Health Sciences, University of Antwerp - Campus Drie Eiken, Universiteitsplein 1, 2610, Antwerp, Wilrijk, Belgium.
Background:
Primary out-of-hours care is developing throughout Europe. High-quality databases with linked data from primary health services can help to improve research and future health services.
Methods:
In 2014, a central clinical research database infrastructure was established (iCAREdata: Improving Care And Research Electronic Data Trust Antwerp, www.icaredata.eu ) for primary and interdisciplinary health care at the University of Antwerp, linking data from General Practice Cooperatives, Emergency Departments and Pharmacies during out-of-hours care. Medical data are pseudonymised using the services of a Trusted Third Party, which encodes private information about patients and physicians before data is sent to iCAREdata.
Results:
iCAREdata provides many new research opportunities in the fields of clinical epidemiology, health care management and quality of care. A key aspect will be to ensure the quality of data registration by all health care providers.
Conclusions:
This article describes the establishment of a research database and the possibilities of linking data from different primary out-of-hours care providers, with the potential to help to improve research and the quality of health care services.
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