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Dementia01:30

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Dementia is a collective term for cognitive disorders primarily affecting memory, thinking, and reasoning. It is not a specific disease but a syndrome, with Alzheimer's disease being the most common cause, accounting for approximately 60-80% of cases. Other types include vascular dementia, Lewy body dementia, and frontotemporal dementia. Dementia affects millions worldwide, particularly older adults, though it is not a normal part of aging.
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Micro-citizenship, dementia and long-term care.

Clive Baldwin1, Michelle Greason2

  • 1St Thomas University, School of Social Work, New Brunswick, Canada baldwin@stu.ca.

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Summary

This study introduces midi- and micro-citizenship to understand dementia care as a practice. It explores building alliances between people with dementia in long-term care and staff to enhance social inclusion and rights.

Keywords:
citizenshipdementiaengagementlong-term caremicro-citizenship

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Area of Science:

  • Gerontology
  • Social Sciences
  • Healthcare Studies

Background:

  • Dementia care is shifting from individualistic to a group-based approach, addressing social and structural discrimination.
  • This paradigm mirrors advancements in disability and mental health studies, aiming to politicize experiences and reconfigure power dynamics.
  • Existing discussions focus on social inclusion and rights, viewing citizenship as a state-based relationship.

Purpose of the Study:

  • To introduce and apply the concepts of midi- and micro-citizenship to dementia care practice.
  • To bridge the personal and political by fostering citizenship alliances between individuals with dementia in long-term care (LTC) and care staff.
  • To analyze the practical application of these citizenship concepts within LTC settings.

Main Methods:

  • Utilized concepts from organization studies: midi- and micro-citizenship.
  • Analyzed data from focus groups with LTC staff.
  • Conducted interviews with family carers of residents in LTC facilities.

Main Results:

  • Demonstrated the utility of midi- and micro-citizenship in understanding citizenship in practice within LTC.
  • Provided insights into the relational and action-based aspects of citizenship for people with dementia and care staff.
  • Highlighted the potential for building practical citizenship alliances in dementia care.

Conclusions:

  • Midi- and micro-citizenship offer a valuable framework for analyzing and enhancing dementia care practice.
  • These concepts facilitate the linkage of personal experiences with political realities in LTC settings.
  • The study suggests new avenues for improving social inclusion and empowering individuals with dementia and their care providers.